Cardiac Kids Developmental Follow-up Program Resources

Listen to experts about the importance of routine neurodevelopmental assessments for children born with complex congenital heart disease.

http://www.cdc.gov/ncbddd/actearly/milestones/index.html

Provides downloadable resources and videos to help parents track their children's development and act early if they have any concerns.

Find information on how to apply for supplemental security income (SSI) for children with disability.

https://soundcloud.com/childrensphila/primary-care-perspectives-episode-142-mental-health-and-congenital-heart-disease-a-review

Lyla El-Messidi Hampton, PhD, ABPP-CN, pediatric neuropsychologist and co-director of the Cardiac Kids Developmental Follow-up Program at CHOP, and Nicholas Seivert, PhD, psychologist in the Cardiac Center at CHOP, review the many reasons for increased mental health risk among children with heart defects, especially single ventricle patients, and provide information about: importance of early identification and intervention; ADHD meds for CHD patients; the higher rate of autism spectrum disorders in this population; the parental distress loop; screening in primary care, and red flags; places to refer at CHOP; and more.

Early intervention (EI) is a group of services provided to children who may have developmental delays.

Early intervention (EI) is a group of services provided to children who may have developmental delays.

Early intervention (EI) is a group of services provided to children who may have developmental delays.

http://www.worrywisekids.org/

This site was launched in 2004 by the Children's Center for OCD and Anxiety in Plymouth Meeting, PA with the generous support of the Childhood OCD Project in Boulder, CO. because of the urgent need to address the growing needs of our children to be equipped to cope with and overcome the stress, worry and anxieties in their life.

https://www.amazon.com/Good-Friends-Are-Hard-Find/dp/096220367X/ref=sr_1_1?dchild=1&keywords=Good%20Friends%20Are%20Hard%20to%20Find%20by%20Fred%20Frankel&qid=1634048477&sr=8-1

Suggests ways in which parents can help children make and maintain friendships, including scheduling one-on-one play dates, encouraging good behavior, and overcoming hyperactivity.

https://www.amazon.com/Teaching-Child-Language-Social-Success/dp/1561451266/ref=sr_1_fkmr0_1?dchild=1&keywords=Teaching%20Your%20Child%20the%20Language%20of%20Social%20Success%20by%20Marshall%20P.%20Duke%2C%20Stephe%20Nowicki%2C%20and%20Elisabeth%20A.%20Martin&qid=1634049363&sr=8-1-fkmr0

Shows parents and teachers how to improve children's nonverbal communication skills, offering the tools children need to communicate ideas and establish and maintain relationships.

https://www.amazon.com/Unwritten-Rules-Friendship-Strategies-Friends/dp/0316917303/ref=sr_1_1?dchild=1&keywords=The%20Unwritten%20Rules%20of%20Friendship%3A%20Simple%20Strategies%20to%20Help%20Your%20Child%20Make%20Friends%20by%20Natalie%20Elman%20and%20Eileen%20Kennedy-Moore&qid=1634049501&sr=8-1

This practical and compassionate handbook helps parents sharpen any child's social skills by identifying the "unwritten rules" that govern all relationships.

https://www.amazon.com/Anxiety-Free-Kids-Interactive-Parents-Children-dp-1618215612/dp/1618215612/ref=dp_ob_title_bk

Anxiety-Free Kids offers parents strategies that help children become happy and worry-free, methods that relieve a child's excessive anxieties and phobias, and tools for fostering interaction and family-oriented solutions.

https://www.amazon.com/Freeing-Your-Child-Anxiety-Practical/dp/0767914929/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=1634049645&sr=8-2

In Freeing Your Child From Anxiety, a childhood anxiety disorder specialist examines all manifestations of childhood fears, including social anxiety, Tourette’s Syndrome, hair-pulling, and Obsessive Compulsive Disorder, and guides you through a proven program to help your child back to emotional safety.

https://www.amazon.com/Growing-Up-Brave-Strategies-Overcome/dp/0316125601/ref=sr_1_1?dchild=1&keywords=Growing%20Up%20Brave%3A%20Expert%20Strategies%20for%20Helping%20Your%20Child%20Overcome%20Fear%2C%20Stress%2C%20and%20Anxiety%20by%20Donna%20Pincus%2C%20PhD&qid=1634050005&s=books&sr=1-1

In Growing Up Brave, Dr. Pincus helps parents identify and understand anxiety in their children, outlines effective and convenient parenting techniques for reducing anxiety, and shows parents how to promote bravery for long-term confidence.

https://www.amazon.com/You-Your-Anxious-Child-Worries/dp/1583334955/ref=sr_1_1?dchild=1&keywords=You%20and%20Your%20Anxious%20Child%20by%20Anne%20Marie%20Albano&qid=1634050870&s=books&sr=1-1

One of the world’s foremost experts on anxiety in children provides a guide to recognizing and alleviating a range of debilitating fears.

https://www.amazon.com/Incredible-Years-Trouble-Shooting-Children/dp/0578434512/ref=sr_1_fkmr0_1?dchild=1&keywords=Incredible%20Years%3A%20A%20Troubleshooting%20Guide%20for%20Parents%20of%20Children%20Aged%203%20to%208%20by%20Carolyn%20Webster-Stratton&qid=1634051592&s=books&sr=1-1-fkmr0

This invaluable handbook use the Incredible Years (R) Parenting Pyramid (R) as the architectural or construction plan for specific parenting tools that help prevent behavior problems from occurring and promote children's social, emotional, and academic competence, and healthy life styles.

https://www.amazon.com/Moody-Cow-Meditates-Kerry-MacLean/dp/086171573X/ref=sr_1_1?dchild=1&keywords=Moody%20Cow%20Meditates%20by%20Kerry%20Lee%20MacLean&qid=1634051117&s=books&sr=1-1

Children can develop greater joy and concentration through the practices of mindfulness and meditation, and Moody Cow Meditates is the perfect way to introduce them. This vibrant and funny children's book is a playful way to introduce children to the power of meditation.

https://www.amazon.com/What-When-Worry-Much-What/dp/1591473144/ref=sr_1_1?dchild=1&keywords=What%20Do%20When%20You%20Worry%20Too%20Much%2C%20A%20Kid%27s%20Guide%20to%20Overcoming%20Anxiety%20by%20Dawn%20Huebner&qid=1634051285&s=books&sr=1-1

What to Do When You Worry Too Much guides children and parents through the cognitive-behavioral techniques most often used in the treatment of anxiety. Lively metaphors and humorous illustrations make the concepts and strategies easy to understand, while clear how-to steps and prompts to draw and write help children to master new skills related to reducing anxiety.

https://www.amazon.com/What-When-Youre-Scared-Worried/dp/1575421534/ref=sr_1_1?dchild=1&keywords=What%20to%20Do%20When%20You%27re%20Scared%20and%20Worried%3A%20A%20Guide%20for%20Kids%20by%20James%20J.%20Crist&qid=1634051204&s=books&sr=1-1

From a dread of spiders to coping with uncertainty to panic attacks, kids have worries, anxiety, and fears, just like adults. This is a book kids can turn to when they need advice, reassurance, and ideas for overcoming fear and anxiety.

https://www.amazon.com/When-Worries-Get-Too-Big-dp-1937473805/dp/1937473805/ref=dp_ob_title_bk

With a special section on evidence-based teaching activities for parents and teachers alike, this bestselling children s classic just became even better and more relevant. Engaging and easy to read, this illustrated children s book is filled with opportunities for children to participate in developing their own self-calming strategies.

https://www.amazon.com/1-2-3-Magic-Discipline-Effective-Parenting/dp/149262988X/ref=sr_1_1?dchild=1&keywords=1-2-3%20Magic%3A%20Effective%20Discipline%20for%20Children%20Ages%202-12%20by%20Thomas%20Phelan&qid=1634051495&s=books&sr=1-1

Using his signature counting method, Dr. Phelan helps parents to quickly, calmly, and effectively stop behaviors like tantrums and meltdowns, whining and pouting, talking back, sibling rivalry and more in toddlers, preschoolers, and middle schoolers.

https://www.scribd.com/book/224317620/How-to-Talk-So-Kids-Will-Listen-Listen-So-Kids-Will-Talk?utm_medium=cpc&utm_source=google_search&utm_campaign=3Q_Google_DSA_NB_All&utm_device=c&gclid=Cj0KCQjw5JSLBhCxARIsAHgO2SeXOhPA-c1bayVowQ5z-8ARYXd6s3I_fnFUHDqzXREmgoy21_1yurEaAvJfEALw_wcB

Learn how to effectively communicate with your child without pleading, bargaining, or raising your voice. Whether your child is 5 or 15, this book is guaranteed to be life-changing. A classic that’s stood the test of time.

https://www.amazon.com/No-Drama-Discipline-Whole-Brain-Nurture-Developing/dp/0345548043/ref=tmm_hrd_swatch_0?_encoding=UTF8&qid=1634052513&sr=1-2

Highlighting the fascinating link between a child’s neurological development and the way a parent reacts to misbehavior, No-Drama Discipline provides an effective, compassionate road map for dealing with tantrums, tensions, and tears—without causing a scene.

https://www.amazon.com/Parents-Charge-Setting-Healthy-Boundaries/dp/0743202023/ref=sr_1_1?dchild=1&keywords=Parents%20in%20Charge%3A%20Setting%20Healthy%2C%20Loving%20Boundaries%20for%20You%20and%20Your%20Child%20by%20Dana%20Chidekel&qid=1634052310&s=books&sr=1-1

Answering key questions about the art of child rearing, this valuable parent's instruction manual offers advice on how to raise children to become competent, responsible, thoughtful, and successful adults, utilizing humor, anecdotes, and advice to tackle topics ranging from effective discipline to promoting a child's self-esteem.

https://www.amazon.com/Sleeping-Through-Night-Revised-Toddlers/dp/0060742569/ref=sr_1_1?dchild=1&keywords=Sleeping%20through%20the%20Night%20by%20Jodi%20Mindell&qid=1634052674&s=books&sr=1-1

Drawing on her ten years of experience in the assessment and treatment of common sleep problems in children, Dr. Jodi A. Mindell now provides tips and techniques, the answers to commonly asked questions, and case studies and quotes from parents who have successfully solved their children's sleep problems.

https://www.amazon.com/Ross-Greene-Understanding-Frustrated-Chronically/dp/B00HTK2FCU/ref=sr_1_1?dchild=1&keywords=The%20Explosive%20Child%3A%20A%20New%20Approach%20for%20Understanding%20and%20Parenting%20Easily%20Frustrated%2C%20Chronically%20Inflexible%20Children%20by%20Ross%20Greene&qid=1634052059&s=books&sr=1-1

The Explosive Child is the highly acclaimed, life-changing parenting guide in which Dr. Greene first delineated the Collaborative Problem Solving approach.  Dr. Greene explains why kids exhibit challenging behaviors, why traditional behavior management strategies may not be effective for many kids, and how to use Plan B to solve problems collaboratively and teach your child the skills he or she is lacking.

https://www.amazon.com/Whole-Brain-Child-Revolutionary-Strategies-Developing/dp/0553386697/ref=sr_1_2?dchild=1&keywords=The%20Whole%20Brain%20Child%3A%2012%20Revolutionary%20Strategies%20to%20Nurture%20Your%20Child%E2%80%99s%20Developing%20Mind%20by%20Daniel%20Siegel%20and%20Tina%20Payne%20Bryson&qid=1634052581&s=books&sr=1-2

In this pioneering, practical book, Daniel J. Siegel, neuropsychiatrist and author of the bestselling Mindsight, and parenting expert Tina Payne Bryson offer a revolutionary approach to child rearing with twelve key strategies that foster healthy brain development, leading to calmer, happier children.

https://www.amazon.com/Calm-Down-Toddler-Tools-Elizabeth-Verdick/dp/1575423162/ref=tmm_other_meta_binding_swatch_0?_encoding=UTF8&qid=1634053539&sr=1-1

Every parent, caregiver—and toddler—knows the misery that comes with meltdowns and temper tantrums. Through rhythmic text and warm illustrations, this gentle, reassuring book offers toddlers simple tools to release strong feelings, express them, and calm themselves down.

https://www.amazon.com/gp/product/1575423081?ref_=dbs_m_mng_rwt_calw_tpbk_7&storeType=ebooks&qid=1634053047&sr=1-1

This book teaches children learn that violence is never okay. Children can learn to manage their anger and other strong feelings. Hands are capable of positive, loving actions such as playing, making music, learning, counting, helping, and much more!

https://www.amazon.com/Take-Grrrr-Anger-Laugh-Learn%C2%AE/dp/1575424940/ref=sr_1_1?dchild=1&keywords=How%20to%20Take%20the%20Grrr%20Out%20of%20Anger%20by%20Elizabeth%20Verdick%20and%20Marjorie%20Lisovskis&qid=1634052782&s=books&sr=1-1

How to Take the Grrrr Out of Anger by Elizabeth Verdick and Marjorie Lisovskis. Kids need help learning how to deal with anger. This book speaks directly to them with strategies they can start using immediately.

https://www.amazon.com/Teeth-Biting-Board-Book-Behavior/dp/1575421283/ref=tmm_other_meta_binding_swatch_0?_encoding=UTF8&qid=1634053047&sr=1-1

Teeth Are Not for Biting gives reasons why children might want to bite. Little mouths feel sore when new teeth come in; sometimes kids bite when they’re hungry, tired, cranky, frustrated, angry, bored, distressed, or seeking attention.

https://www.amazon.com/What-When-You-Grumble-Much/dp/1591474507/ref=sr_1_1?dchild=1&keywords=What%20to%20Do%20When%20You%20Grumble%20Too%20Much%20by%20Dawn%20Huebner&qid=1634052907&s=books&sr=1-1

What to Do When You Grumble Too Much guides children and their parents through the cognitive-behavioral techniques used to treat negative thinking.

https://www.amazon.com/What-When-Your-Temper-Flares/dp/1433801345/ref=sr_1_1?dchild=1&keywords=What%20to%20Do%20When%20Your%20Temper%20Flares%3A%20A%20Kid%E2%80%99s%20Guide%20to%20Overcoming%20Anger%20by%20Dawn%20Huebner&qid=1634052969&s=books&sr=1-1

What to Do When Your Temper Flares guides children and their parents through the cognitive-behavioral techniques used to treat problems with anger.

https://www.amazon.com/Executive-Skills-Children-Adolescents-Third-dp-1462535313/dp/1462535313/ref=dp_ob_title_bk

More than 100,000 school practitioners and teachers (K–12) have benefited from the step-by-step guidelines and practical tools in this influential go-to resource, now revised and expanded with six new chapters. The third edition presents effective ways to assess students' strengths and weaknesses, create supportive instructional environments, and promote specific skills, such as organization, time management, sustained attention, and emotional control.

https://www.amazon.com/Late-Lost-Unprepared-Executive-Functioning/dp/1890627844/ref=sr_1_1?dchild=1&keywords=Late%2C%20Lost%2C%20and%20Unprepared%3A%20A%20Parents%E2%80%99%20Guide%20to%20Helping%20Children%20with%20Executive%20Functioning%20by%20Joyce%20Cooper-Kahn%20and%20Laurie%20Dietzel&qid=1634053966&s=books&sr=1-1

Late, Lost, and Unprepared is a must-have book for parents of children from primary school through high school who struggle with: impulse control, cognitive flexibility, initiation, working memory, planning & organizing, and self-monitoring.

https://www.amazon.com/Smart-but-Scattered-Revolutionary-Executive/dp/1593854455/ref=sr_1_1?dchild=1&keywords=Smart%20but%20Scattered%3A%20The%20Revolutionary%20%E2%80%9CExecutive%20Skills%E2%80%9D%20Approach%20to%20Helping%20Kids%20Reach%20Their%20Potential%20by%20Peg%20Dawson%20and%20Richard%20Guare&qid=1634053690&s=books&sr=1-1

Learn easy-to-follow steps to identify your child’s strengths and weaknesses, use activities and techniques proven to boost specific skills, and problem-solve daily routines. Small changes can add up to big improvements--this empowering book shows how.