Division of Neurology Resources

https://www.chop.edu/services/electroencephalogram-eeg-testing-children

An electroencephalogram (EEG) is a test that measures the electrical activity in the brain through small button electrodes that are placed on your child's scalp.

To help prepare your child for her video EEG, watch this kid-friendly slideshow, which offers a step-by-step description of what to expect during the test.

https://www.stroke.org/en/about-stroke/stroke-in-children/pediatric-stroke-infographic

Pediatric stroke can happen in infants, children and even before birth. This infographic created by the American Stroke Association offers facts about perinatal and childhood stroke.

This resource from Children’s Hospital of Philadelphia describes how to apply for PA medical assistance as secondary insurance.

This resource from Children’s Hospital of Philadelphia provides information on 504 plans, which ensure reasonable accommodations for children who qualify.

Use this detailed headache calendar to document each time your child has a headache and bring the completed calendars to your child’s next appointment with the doctor.

Complete this easy-to-use migraine headache calendar to mark each day your child has a headache and bring it to your child’s next appointment with the doctor.

Listen to pediatric neurologist Sarah Hopkins, MD, MSPH, talk about the diagnosis and management of acute flaccid myelitis (AFM), including how to distinguish it from other similar neurologic diseases.

Listen to pediatric neurologist Elizabeth Kichula, MD, PhD, discuss the pathophysiology and clinical presentation of spinal muscular atrophy (SMA), prenatal screening, diagnosis and treatment for this neurodegenerative disease.

The Neuro-Rehab Parent Support Group is open to parents and caregivers of children with acquired brain injury (including traumatic brain injury and stroke). The group meets the second Wednesday of every month from 7 to 8:30 p.m.

The Teen Neuro-Rehab Support Group provides support to teens and young adults (ages 13-21) with acquired brain injuries (including traumatic brain injury and stroke). The group meets the second Wednesday of every month from 7 to 8:30 p.m.

Watch the video to learn how Children’s Hospital of Philadelphia’s Leukodystrophy Center is using research to advance clinical care for white matter diseases.

Meet families whose children have Aicardi-Goutières syndrome (AGS), and see highlights from the 2019 AGS Family Conference at CHOP.

This video includes interviews with families of children diagnosed with TUBB4A-related leukodystrophies, including Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum (H-ABC), along with highlights from the 2018 H-ABC Family Conference.

Children with moyamoya disease require coordinated care. Treatment includes indirect bypass surgery which helps reduce the risk of stroke, as well as medical and rehabilitation treatment by stroke specialists.

Families travel from around the world to be treated by the pediatric neurosurgery team at The Children's Hospital of Philadelphia. This video series explains several neurosurgery procedures performed by pediatric neurosurgeons at CHOP and current brain tumor research.

https://www.youtube.com/watch?v=pvyocL0njPg

The International Alliance for Pediatric Stroke, in partnership with the American Heart Association/American Stroke Association created a video about pediatric stroke to help raise awareness that a stroke can happen to infants, children and even before birth. The video features Rebecca Ichord, MD, pediatric neurologist and director of the Pediatric Stroke Program at CHOP.

CHOP concussion experts encourage families to seek medical attention for any type of head injury and follow doctors’ advice before resuming typical activities.

In this video, pediatric epilepsy specialists from CHOP's Pediatric Epilepsy Program talk about our approach to personalized treatment of children with seizures and epilepsy.

Watch a video about inpatient rehabilitation services for children and adolescents at Children's Hospital of Philadelphia (CHOP).

https://americanheadachesociety.org/

The American Headache Society® Committee for Headache Education is dedicated to advancing the treatment and management of patients with headaches. The website offers educational materials, tools and resources to support patients and their families.

https://americanmigrainefoundation.org/understanding-migraine-cat/migraine-in-children/

The American Migraine Foundation provides information about migraine symptoms and triggers in children, how to help your child manage migraines, and strategies for coping with migraines at school and in other social situations.

http://www.strokeassociation.org/STROKEORG/

The American Stroke Association is the division of the American Heart Association that's solely focused on reducing disability and death from stroke through research, education, fundraising and advocacy.

http://www.bianj.org

The Brain Injury Alliance of New Jersey (BIANJ) has a family helpline in addition to information on its website.

http://www.biausa.org

The Brain Injury Association of America (BIAA) is the country’s oldest and largest nationwide brain injury advocacy organization.

http://www.biapa.org

BIAPA provides a listing of support groups for regions across the state, a resource line, and pre-enrollment assistance information.

https://cpfamilynetwork.org/resources/resources-guide/childrens-hemiplegia-and-stroke-association-chasa/#:~:text=HemiKids%20is%20an%20online%20discussion,raising%20a%20child%20with%20hemiplegia.

Hemi-Kids is an online support group of over 900 families of children who have hemiplegia or hemiplegic cerebral palsy.

https://iapediatricstroke.org/

IAPS was established to facilitate collaboration among the many international pediatric stroke communities. The purpose is to provide a stronger, more united voice to effectively advocate for newborns, babies and children who have had a stroke.

http://www.headaches.org/

The National Headache Foundation offers comprehensive resources to help patients and families better understand headaches and migraines, as well as learn about advances in treatment.

https://www.ninds.nih.gov/

The mission of the National Institute of Neurological Disorders and Stroke (NINDS) is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.

https://catalog.ninds.nih.gov/publications/friedreich-ataxia

NINDS offers information about Friedreich's Ataxia, including signs and symptoms, diagnosis, treatment and research.

https://www.nationalmssociety.org/

The National MS Society provides information, resources, programs and services for individuals living with MS and other immune-mediated, demyelinating diseases of the central nervous system.

http://www.stroke.org

The National Stroke Association provides information and resources to the public and health professionals with the aim of reducing the incidence and impact of stroke.

https://www.nj.gov/humanservices/dds/programs/braininjuryfund/

The Traumatic Brain Injury (TBI) Fund provides New Jersey residents of any age, who have survived a traumatic brain injury, the opportunity to access the brain injury related services and supports they need to live in the community.

https://patsainc.org/

The PA Tourette Syndrome Alliance is a non-profit organization that promotes awareness and acceptance, provides education, and assists families, schools and communities while advocating for individuals with TS.

https://www.tourette.org/

The Tourette Association of America is a non-profit organization working to make life better for all people affected by Tourette and Tic disorders, offering resources and referrals to help individuals and families cope with the challenges related to these disorders.

https://americanmigrainefoundation.org/resource-library/pediatric-migraine/

Christina Szperka, MD, Director of CHOP's Pediatric Headache Program, outlines common symptoms and treatment options for pediatric migraine in an interview with the American Migraine Foundation.