Newborn and Infant Chronic Lung Disease Program
Housed within CHOP’s Harriet and Ronald Lassin Newborn/Infant Intensive Care Unit (N/IICU), the Newborn and Infant Chronic Lung Disease Program offers infants with chronic lung disease (CLD) — and their families — seamless care from initial evaluation, to treatment and long-term follow-up.
The program offers:
- An experienced team of doctors, nurses and support staff who are experts in the management of infants with chronic lung disease
- A coordinated, multidisciplinary approach to each child’s evaluation and treatment
- Regular communication with families, referring physicians and specialists to create a comprehensive, customized care plan for each child
- The newest and most innovative diagnostic and therapeutic modalities available
- Ongoing research to learn more about CLD causes, explore new treatment options, and enhance outcomes for all children with CLD
Lifesaving care when it counts
Despite advances in neonatal care, bronchopulmonary dysplasia (BPD), also called chronic lung disease, remains a major source of morbidity and mortality for extremely low birth weight infants. Over the past 10 years, we have seen a steady increase in referrals of infants with CLD to the N/IICU.
We created the Newborn and Infant Chronic Lung Disease Program to provide lifesaving therapy to all children with CLD — without compromising their long-term quality of life.
A multidisciplinary team
Our experienced team is made up of experts from various specialties who focus on providing expert medical care for each patient while providing emotional support for your whole family.
Led by attending neonatologists, the entire team specializes in neonatal/infant care. The team includes:
- Attending neonatologists
- Specialized nursing teams
- Respiratory therapists
- Neonatal clinical pharmacists
- Neonatal nutritionists
- Physical and occupational therapists
- Speech therapists
- Case managers
- A psychosocial support team made up of social workers, psychologists and child life specialists
Our program also collaborates with other specialists throughout the Hospital as needed to ensure your child receives the comprehensive care he or she needs. Your child will benefit from around-the-clock access to every pediatric subspecialty.
Ongoing CLD research
Research is an integral part of our Newborn and Infant Chronic Lung Disease Program. As we work to develop a broad evidence-based approach to the management of CLD, we must first ensure we have accurate and meaningful data.
Our physicians and researchers are actively working on:
- Benchmarking the care and outcomes of infants with severe CLD
- Developing clinical protocols that can be evaluated in systematic prospective studies
- Promoting better understanding of the pathophysiology of CLD, in conjunction with our basic science research
In addition to our own CLD research, we also participate in the Neonatal Research Network of the National Institute of Child Health and Human Development and the Children's Hospitals Neonatal Consortium.