Craniosynostosis is a condition in which the sutures (growth seams) in an infant’s skull close too early, causing problems with normal brain and skull growth. Craniosynostosis can occur as an isolated condition (non-syndromic craniosynostosis), or in conjunction with other anomalies as part of a syndrome (syndromic craniosynostosis).
Every child’s diagnosis of craniosynostosis is unique and requires an individualized treatment plan. Coordinated care is especially important for children with syndromic craniosynostosis because of the associated physical and developmental issues. Families should look for treatment centers that offer multidisciplinary programs with pediatric specialists experienced in caring for every aspect of your child’s condition.