Goldenhar syndrome is a rare congenital condition characterized by abnormal development of the eye, ear and spine. Children with Goldenhar syndrome are born with partially formed or totally absent ears, benign growths of the eye, and spinal deformities such as scoliosis. Goldenhar is also known as oculo-auriculo-vertebral spectrum or OAV, and affects one in every 3,000-5,000 births.
Aidan was born with Goldenhar syndrome and Von Willebrand syndrome, two rare genetic conditions that need expert medical management. He receives care from The Children's Hospital of Philadelphia at CHOP Specialty Care Centers in New Jersey.
The Spine Program is a cornerstone of the Division of Orthopedics, which is ranked No. 1 in the nation on the U.S. News & World Report Honor Roll of Best Children’s Hospitals. Thanks to their surgical knowledge, clinical experience and innovative research, CHOP’s Spine Program offers a depth and breadth of experience treating spine conditions that is unparalleled in the region.