Most hereditary neuroblastoma (NBL) occur sporadically, affecting individuals who have no family history of the disease. However, in 1-2 percent of cases, a susceptibility to develop NBL can be inherited from a parent. Compared to patients with the sporadic form of the disease, individuals with familial neuroblastoma have a higher incidence of multiple primary tumors and are diagnosed at a younger age.
After spending most of her life being treated for neuroblastoma, it seemed that 18-month-old Edie had run out of options. Her family turned to The Children’s Hospital of Philadelphia, where an experimental treatment changed the course of this little girl’s life.
The Cancer Center at CHOP is top ranked in U.S. News & World Report's rankings of Best Children's Hospitals. Our center is also ranked No. 1 in the nation in Parents magazine’s 2013 report of 10 Best Children’s Hospitals.