Hypoplastic Left Heart Syndrome (HLHS) Patient Stories

Born with hypoplastic left heart syndrome, Thomas had a 50% chance of making it to his first reconstructive heart surgery. CHOP helped him beat those odds.

In the midst of the pandemic, a family travels from Hawaii to Philadelphia for their daughter’s third open-heart surgery. Find out why.

Born with a severe congenital heart defect, 17-year-old Brendan is now an accomplished swimmer after treatment from Children’s Hospital of Philadelphia.

Michael, 5, is meeting all his developmental milestones after surgeries for a severe heart defect. He was closely monitored by the Cardiac Kids Developmental Follow-up Program at CHOP.

Born with multiple ventricular septal heart defects, Siena overcame many challenges during her first year. Now 14 months old, she's back home and reaching new milestones.

Kylee is a happy and healthy 5-year-old girl thanks in large part to a heart transplant at Children’s Hospital of Philadelphia.

Francis was born with HLHS, a severe heart defect. After the first two of a staged series of three heart reconstruction procedures, he is doing well.

Jeremy was born with hypoplastic left heart syndrome (HLHS). After a series of three reconstructive surgeries, he’s now an outgoing 5-year-old.

John, 6, had an innovative procedure to seal the leaks in his lymphatics system. Today, he has the energy to be active and play sports

Diagnosed with heart defects before birth, Stosh had heart surgery in utero, three reconstructive procedures in his first four years, then a heart transplant.