Juvenile Polyposis Syndrome Resources
Websites
American Cancer Society
https://www.cancer.org/cancer/cancer-in-children.html
The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.
Coalition for Genetic Fairness
http://www.geneticfairness.org/
It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.
Colon Cancer Alliance
http://www.ccalliance.org/
The Colon Cancer Alliance is a nonprofit patient advocacy organization dedicated to increasing colon cancer screening rates and survivorship.
GeneReviews™
http://www.ncbi.nlm.nih.gov/books/NBK1116/
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
National Organization for Rare Disorders (NORD)
http://www.rarediseases.org/
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
The Genetic Information Nondiscrimination Act (GINA)
http://ghr.nlm.nih.gov/spotlight=thegeneticinformationnondiscriminationactgina
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.