Nevoid Basal Cell Carcinoma Syndrome Resources

https://gorlinsyndrome.org/

BCCNS Life Support Network provides information for children and adults with Basal Cell Carcinoma Nevus Syndrome, an inherited genetic disorder.

http://www.geneticfairness.org/

It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.

http://www.ncbi.nlm.nih.gov/books/NBK1116/

GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.

http://www.gorlingroup.org/

The Gorlin Syndrome Group is a network offering guidance and information to patients, their families and caregivers whose lives are affected by Gorlin Syndrome.

http://www.rarediseases.org/

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

http://ghr.nlm.nih.gov/spotlight=thegeneticinformationnondiscriminationactgina

GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.