Omphalocele Patient Stories
1 - 9 of 9
Omphalocele Discovered During Pregnancy: Grace’s Story
At CHOP, when pediatric surgeons perform postnatal repair of omphalocele, a child’s health and quality of life are both top of mind.
Oliver’s Story: Prenatal and Postnatal Care of CDH and Giant Omphalocele
After an unexpected prenatal diagnosis, Olly’s parents found comfort with the experienced team at CHOP’s Center for Fetal Diagnosis and Treatment.
Giant Omphalocele: Emma’s Story
After a long journey to overcome giant omphalocele, a life-threatening birth defect, Emma is thriving.
Giant Omphalocele: Jameson's Story
When Jameson was diagnosed with giant omphalocele before birth, the positive attitude of the team at CHOP made his parents feel much better about the journey ahead.
The Best Medicine for Taran: His Mother’s Milk
After her son Taran was born with an omphalocele, Karen used her milk – first by pumping, then direct breastfeeding – to give him all the strength she could.
Omphalocele and Feeding Challenges: Eliana's Story
When Anna was 18 weeks pregnant, she discovered one of twins she was carrying had omphalocele, a rare, potentially life-threatening birth defect.
Giant Omphalocele: Charlotte's Story
Diagnosed before birth with giant omphalocele, Charlotte came to CHOP for delivery, surgery and follow-up care by a team experienced in caring for this birth defect.
Giant Omphalocele: Jackson's Story
Casey and Bryan Kirsch were determined to give their son Jackson every chance to live a healthy life when they learned that he had a giant omphalocele.
Omphalocele: Charlie's Story
One of the first patients treated by CHOP's Center for Fetal Diagnosis & Treatment, Charlie underwent seven surgeries to repair a giant omphalocele.