Pulmonary Hypertension Patient Stories

Born with a rare lung disorder, Leah is one of the youngest patients to go from a heart-lung bypass machine to successful lung transplant.

When two-year-old Elias was placed on ECMO with severe pulmonary hypertension, his chances of survival were almost nonexistent. CHOP cardiothoracic surgeon Dr. Maeda saved his life through a risky procedure called Potts Shunt.

Eleven years after receiving lifesaving care at CHOP and Pennsylvania Hospital, one N/IICU patient returns to say thank you.

Born 13 weeks premature, Taylor is now a happy toddler, thanks to expert care and innovative treatment for severe chronic lung disease at CHOP.

Luca had to receive a lung transplant at just 5 months old to save his life. Now, he’s a thriving baby thanks to Children’s Hospital of Philadelphia.

Cole, 12, is able to treat his pulmonary hypertension with oral medications thanks to a clinical trial at Children’s Hospital of Philadelphia.

Chad, 11, is smiling again after multiple surgeries and ongoing treatment for CDH and pulmonary hypertension at Children’s Hospital of Philadelphia.

A new regimen of oral medications allows Stella, 10, to treat her pulmonary hypertension and live an active life.

Lily, 8, has her complicated heart problems including pulmonary hypertension under control thanks to Children’s Hospital of Philadelphia.

Olivia has been treated for pulmonary hypertension since she was a baby. Now 9, she’s a happy, caring child who loves books and music.