X-linked Lymphoproliferative Syndrome Resources

http://www.atsociety.org.uk

The A-T Society works to improve quality of life and care for people living with ataxia-telangiectasia while promoting research to lengthen lives and find a cure.

http://www.geneticfairness.org/

It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.

http://www.ncbi.nlm.nih.gov/books/NBK1116/

GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.

https://www.histio.org/

The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders.

http://primaryimmune.org/

IDF is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases.

http://www.info4pi.org/library

The Jeffrey Modell Foundation is a public charity devoted to early and precise diagnosis, meaningful treatments, and ultimately, cures for primary immunodeficiency (PI) diseases.

http://www.rarediseases.org/

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

http://ghr.nlm.nih.gov/spotlight=thegeneticinformationnondiscriminationactgina

GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.

http://www.xlpresearchtrust.org/

The XLP Research Trust exists to promote and fund research into the cause, management, symptoms and cure for X-linked lymphoproliferative syndrome (XLP).