Sara B. DeMauro, MD, MSCE

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Sara B. DeMauro, MD, MSCE, is an attending neonatologist with the Division of Neonatology and Program Director of the Neonatal Follow-up Program at Children's Hospital of Philadelphia.

Locations: Main Hospital

Appointments and Referrals: 1-800-TRY-CHOP (1-800-879-2467)

Background

Sara B. DeMauro, MD, MSCE, is an Associate Professor of Pediatrics in the Clinician Educator Track at the University of Pennsylvania Perelman School of Medicine, Program Director for Neonatal Follow-up and attending neonatologist in the Division of Neonatology at Children's Hospital of Philadelphia (CHOP).  Dr. DeMauro obtained her master's degree in clinical epidemiology (MSCE) with a focus in clinical trials at the University of Pennsylvania Center for Clinical Epidemiology and Biostatistics (CCEB) during her fellowship in neonatal-perinatal medicine at CHOP.

Dr. DeMauro is also appointed as Associate Scholar in the CCEB.  Her primary clinical and research focus is in studying methods to improve early childhood outcomes after critical neonatal illness.  CHOP/Penn has been a member of the NICHD Neonatal Research Network (NRN) since 2011. She is the Lead Follow-up Investigator and Alternate Principal Investigator (PI) for the CHOP/Penn NRN center. Our local NRN observational study and randomized trial follow-up rates at 22-26 months corrected age consistently exceed 95%.

In addition, as Program Director for Neonatal Follow-up at CHOP, Dr. DeMauro oversees follow-up activities, education, and program development in 6 neonatal follow-up clinics throughout the CHOP Newborn Care Network.  There are currently more than 5,000 children enrolled in the follow-up program.  She is independently funded by NHLBI as PI for the Clinical Coordinating Center (CCC) of the HYdrocortisone for BPD Developmental and Respiratory (HYBRiD) Outcomes Study and the Transfusion of Prematures 5-year (TOP 5) Early School Age Study, by NICHD as a site PI for the Outcomes of Babies with Opioid Exposure (OBOE) Longitudinal Study, and by the Thrasher Research Fund.  These grants all fund studies of functional clinical outcomes among young children who were born prematurely or have other risk factors for poor outcomes.

Education and Training

Medical School

MD - UMDNJ-Robert Wood Johnson Medical School, Newark, NJ

Residency

Pediatrics - The Children's Hospital of Philadelphia, Philadelphia, PA

Fellowship

Neonatal-Perinatal Medicine - The Children's Hospital of Philadelphia, Philadelphia, PA

Board Certification

Neonatal-Perinatal Medicine – American Board of Pediatrics

Undergraduate Degree

BS in Molecular Biophysics and Biochemistry - Yale University, New Haven, CT

Graduate Degree

MS in Clinical Epidemiology - University of Pennsylvania Perelman School of Medicine, Center for Clinical Epidemiology and Biostatistics, Philadelphia, PA

Titles and Academic Titles

Attending Neonatologist

Program Director, Neonatal Follow-up Program

Harriet and Ronald Lassin Endowed Chair in Pediatric Neonatology

Associate Professor of Pediatrics, Perelman School of Medicine at the University of Pennsylvania
Associate Scholar, University of Pennsylvania Perelman School of Medicine, Center for Clinical Epidemiology and Biostatistics

Departments and Services

Research Interests

Developmental outcomes
Developmental assessment
Randomized clinical trials
Neonatal epidemiology
Bronchopulmonary dysplasia
Neonatal tracheostomy
Neonatal opioid exposure
Research methodology
Research ethics

Publications

Papers

2022

Puopolo KM, Mukhopadhyay S, Hansen NI, Flannery DD, Greenberg RG, Sanchez PJ, Bell EF, DeMauro SB, Wyckoff MH, Eichenwald EC, Stoll BJ, for the Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. Group B Streptococcal Infection in Extremely Preterm Neonates and Neurodevelopmental Outcomes at 2 Years. Clin Infect Dis. March 2022. PubMed PMID: pending; PubMed Central PMCID: pending. doi:10.1093/CID/CIAC222. Online ahead of print.

Bell EF, Hintz SR, Hansen NI, Bann CM, Wyckoff MH, DeMauro SB, Walsh MC, Vohr BR, Stoll BJ, Carlo WA, Van Meurs KP, Rysavy MA, Patel RM, Merhar SL, Sánchez PJ, Laptook AR, Hibbs AM, Cotten CM, D'Angio CT, Winter S, Fuller J, Das A; Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. Mortality, In-Hospital Morbidity, Care Practices, and 2-Year Outcomes for Extremely Preterm Infants in the US, 2013-2018. JAMA. 2022 Jan 18;327(3):248-263. doi: 10.1001/jama.2021.23580. PMID: 35040888

Herrick HM, Passarella M, Weimer J, Bonafide CP, DeMauro SB. Alarm Burden in Infants With Bronchopulmonary Dysplasia Monitored With Pulse Oximetry at Home. JAMA Netw Open. 2022 Jun 1;5(6):e2218367. doi: 10.1001/jamanetworkopen.2022.18367. PubMed PMID: 35737392; PubMed Central PMCID: PMC9227001

DeMauro SB, Merhar SL, Peralta-Carcelen M, Vohr BR, Duncan AF, Hintz SR. The critical importance of follow-up to school age: Contributions of the NICHD Neonatal Research Network. Semin Perinatol. 2022 Jun 10:151643.c

Ramachandran S, Foglia EE, DeMauro SB, Chawla S, Brion LP, Wyckoff MH. Perinatal management: Lessons learned from the neonatal research network. Semin Perinatol. 2022 Nov;46(7):151636. doi: 10.1016/j.semperi.2022.151636. Epub 2022 Jun 10. PMID: 35835614.

Handley SC, Kumbhat N, Eggleston B, Foglia EE, Davis AS, Van Meurs K, Lakshminrusimha S, Walsh M, Watterberg KL, Wyckoff MH, Das A, DeMauro SB. Exposure to umbilical cord management approaches and death or neurodevelopmental impairment at 22-26 months' corrected age after extremely preterm birth. Arch Dis Child Fetal Neonatal Ed. 2022 Oct17:fetalneonatal-2022-324565. doi: 10.1136/archdischild-2022-324565. Epub ahead of print. PMID: 36253076.

Nitkin CR, Bamat NA, Lagatta J, DeMauro SB, Lee HC, Patel RM, King B, Slaughter JL, Campbell JP, Richardson T, Lewis T. Pulmonary Hypertension in Preterm Infants Treated With Laser vs Anti-Vascular Endothelial Growth Factor Therapy for Retinopathy of Prematurity. JAMA Ophthalmol. 2022 Nov 1;140(11):1085-1094. doi: 10.1001/jamaophthalmol.2022.3788. PubMed PMID: 36201183; PubMed Central PMCID: PMC9539731.

Montoya-Williams D, Gualy S, Mazur M, Huber M, Peña MM, DeMauro SB, Duncan AF. Impact of COVID-19 on Infants Followed After Discharge from the NICU Using a Telemedicine Model. American Journal of Perinatology. 2022 Nov 30.

Jensen EA, DeMauro SB. Reduction in mechanical ventilation: Necessary but not sufficient to prevent bronchopulmonary dysplasia in extremely preterm infants? [Published online ahead of print Dec. 31, 2021] J Pediatr.

DeMauro SB, Burkhardt M, Wood A, Nilan K, Jensen EA, Bamat NA, Zhang H, Gibbs K. Early motor development in infants with moderate or severe bronchopulmonary dysplasia. J Neonatal Perinatal Med. 2022;15(1):55-62.

Bell EF, Hintz SR, Hansen NI, Bann CM, Wyckoff MH, DeMauro SB, Walsh MC, Vohr BR, Stoll BJ, Carlo WA, Van Meurs KP, Rysavy MA, Patel RM, Merhar SL, Sanchez PJ, Laptook AR, Hibbs AM, Cotten CM, D’Angio CT, Winter S, Fuller J, Das A; Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. Mortality, in-hospital morbidity, care practices, and 2-year outcomes for extremely preterm infants in the US, 2013-2018. JAMA. 2022;327(3):248-263.

Bell EF, Hintz SR, Hansen NI, Bann CM, Wyckoff MH, DeMauro SB, Walsh MC, Vohr BR, Stoll BJ, Carlo WA, Van Meurs KP, Rysavy MA, Patel RM, Merhar SL, Sánchez PJ, Laptook AR, Hibbs AM, Cotten CM, D'Angio CT, Winter S, Fuller J, Das A; Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. Mortality, In-Hospital Morbidity, Care Practices, and 2-Year Outcomes for Extremely Preterm Infants in the US, 2013-2018. JAMA. 2022 Jan 18;327(3):248-263. doi: 10.1001/jama.2021.23580. PMID: 35040888

Puopolo KM, Mukhopadhyay S, Hansen NI, Flannery DD, Greenberg RG, Sanchez PJ, Bell EF, DeMauro SB, Wyckoff MH, Eichenwald EC, Stoll BJ, for the Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. Group B Streptococcal Infection in Extremely Preterm Neonates and Neurodevelopmental Outcomes at 2 Years. Clin Infect Dis. March 2022. PubMed PMID: pending; PubMed Central PMCID: pending. doi:10.1093/CID/CIAC222. Online ahead of print.

2021

Jensen EA, DeMauro SB. Reduction in mechanical ventilation: Necessary but not sufficient to prevent bronchopulmonary dysplasia in extremely preterm infants? J Pediatr. 2021 Dec 30:S0022-3476(21)01275-0. doi: 10.1016/j.jpeds.2021.12.068. Online ahead of print. PMID: 34974061 No abstract available.

Laptook AR, Shankaran S, Barnes P, Rollins N, Do BT, Parikh NA, Hamrick S, Hintz SR, Tyson JE, Bell EF, Ambalavanan N, Goldberg RN, Pappas A, Huitema C, Pedroza C, Chaudhary AS, Hensman AM, Das A, Wyckoff M, Khan A, Walsh MC, Watterberg KL, Faix R, Truog W, Guillet R, Sokol GM, Poindexter BB, Higgins RD; Limitations of Conventional Magnetic Resonance Imaging as a Predictor of Death or Disability Following Neonatal Hypoxic-Ischemic Encephalopathy in the Late Hypothermia Trial. Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network.J Pediatr. 2021 Mar;230:106-111.e6. doi: 10.1016/j.jpeds.2020.11.015. Epub 2020 Nov 13.PMID: 33189747

Kim F, Bernbaum J, Connelly J, Gerdes M, Hedrick HL, Hoffman C, Rintoul NE, Ziolkowski K, DeMauro SB. Survival and Developmental Outcomes of Neonates Treated with Extracorporeal Membrane Oxygenation: A 10-Year Single-Center Experience. J Pediatr. 2021 Feb;229:134-140.e3. doi: 10.1016/j.jpeds.2020.10.011. Epub 2020 Oct 13.PMID: 33058857

Mukhopadhyay S, Puopolo KM, Hansen NI, Lorch SA, DeMauro SB, Greenberg RG, Cotten CM, Sanchez PJ, Bell EF, Eichenwald EC, Stoll BJ; NICHD Neonatal Research Network. Neurodevelopmental outcomes following neonatal late-onset sepsis and blood culture-negative conditions. Arch Dis Child Fetal Neonatal Ed. 2021 Jan 21:fetalneonatal-2020-320664. doi: 10.1136/archdischild-2020-320664. Online ahead of print. PMID: 33478957.

Kumbhat N, Eggleston B, Davis AS, Van Meurs KP, DeMauro SB, Foglia EE, Lakshminrusimha S, Walsh MC, Watterberg KL, Wyckoff MH, Das A, Handley SC; Placental transfusion and short-term outcomes among extremely preterm infants. Generic Database Subcommittee of the NICHD Neonatal Research Network; undefined.Arch Dis Child Fetal Neonatal Ed. 2021 Jan;106(1):62-68. doi: 10.1136/archdischild-2019-318710. Epub 2020 Jul 30.PMID: 32732380

2020

Kirpalani H, Bell EF, Hintz SR, Tan S, Schmidt B, Chaudhary AS, Johnson KJ, Crawford MM, Newman JE, Vohr BR, Carlo WA, D'Angio CT, Kennedy KA, Ohls RK, Poindexter BB, Schibler K, Whyte RK, Widness JA, Zupancic JAF, Wyckoff MH, Truog WE, Walsh MC, Chock VY, Laptook AR, Sokol GM, Yoder BA, Patel RM, Cotten CM, Carmen MF, Devaskar U, Chawla S, Seabrook R, Higgins RD, Das A; Higher or Lower Hemoglobin Transfusion Thresholds for Preterm Infants. Eunice Kennedy Shriver NICHD Neonatal Research Network.N Engl J Med. 2020 Dec 31;383(27):2639-2651. doi: 10.1056/NEJMoa2020248.PMID: 33382931 Clinical Trial.

Flynn RS, Huber MD, DeMauro SB. Predictive Value of the BSID-II and the Bayley-III for Early School Age Cognitive Function in Very Preterm Infants. Glob Pediatr Health. 2020 Nov 20;7:2333794X20973146. doi: 10.1177/2333794X20973146. eCollection 2020.PMID: 33283025 Free PMC article.

Dworetz AR, Natarajan G, Langer J, Kinlaw K, James JR, Bidegain M, Das A, Poindexter B, Bell EF, Cotten CM, Kirpalani H, Shankaran S, Stoll BJ; Eunice Kennedy Shriver National Institute of Child Health; Withholding or withdrawing life-sustaining treatment in extremely low gestational age neonates. Human Development Neonatal Research Network.Arch Dis Child Fetal Neonatal Ed. 2020 Oct 20:fetalneonatal-2020-318855. doi: 10.1136/archdischild-2020-318855. Online ahead of print.PMID: 33082153

Zheng Q, Martin-Saavedra JS, Saade-Lemus S, Vossough A, Zuccoli G, Gonçalves FG, Freeman CW, Ouyang M, Singh V, Padula MA, Demauro SB, Flibotte J, Eichenwald EC, Detre JA, Sze RW, Huang H, Hwang M. Cerebral Pulsed Arterial Spin Labeling Perfusion Weighted Imaging Predicts Language and Motor Outcomes in Neonatal Hypoxic-Ischemic Encephalopathy. Front Pediatr. 2020 Sep 25;8:576489. doi: 10.3389/fped.2020.576489. eCollection 2020.PMID: 33102411 Free PMC article.

Chorney SR, Zur KB, Buzi A, McKenna Benoit MK, Chennupati SK, Kleinman S, DeMauro SB, Elden LM. Recorded Flexible Nasolaryngoscopy for Neonatal Vocal Cord Assessment in a Prospective Cohort. Ann Otol Rhinol Laryngol. 2020 Aug 14:3489420950370. doi: 10.1177/0003489420950370. Online ahead of print. PMID: 32795099

DeMauro SB. Recorded Continuous Oximetry Improves Postdischarge Management of Bronchopulmonary Dysplasia. Pediatrics. 2020 Aug;146(2):e2020002774. doi: 10.1542/peds.2020-002774. Epub 2020 Jul 14.PMID: 32665371 No abstract available.

Kumbhat N, Eggleston B, Davis AS, Van Meurs KP, DeMauro SB, Foglia EE, Lakshminrusimha S, Walsh MC, Watterberg KL, Wyckoff MH, Das A, Handley SC; Generic Database Subcommittee of the NICHD Neonatal Research Network; undefined. Placental transfusion and short-term outcomes among extremely preterm infants. Arch Dis Child Fetal Neonatal Ed. 2020 Jul 30:fetalneonatal-2019-318710. doi: 10.1136/archdischild-2019-318710. Online ahead of print. PMID: 32732380

Travers CP, Carlo WA, McDonald SA, Das A, Ambalavanan N, Bell EF, Sánchez PJ, Stoll BJ, Wyckoff MH, Laptook AR, Van Meurs KP, Goldberg RN, D'Angio CT, Shankaran S, DeMauro SB, Walsh MC, Peralta-Carcelen M, Collins MV, Ball MB, Hale EC, Newman NS, Profit J, Gould JB, Lorch SA, Bann CM, Bidegain M, Higgins RD; Racial/Ethnic Disparities Among Extremely Preterm Infants in the United States From 2002 to 2016. Generic Database and Follow-up Subcommittees of the Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. JAMA Netw Open. 2020 Jun 1;3(6):e206757. doi: 10.1001/jamanetworkopen.2020.6757. PMID: 32520359 [PubMed - in process] Free PMC Article

Travers CP, Carlo WA, McDonald SA, Das A, Ambalavanan N, Bell EF, Sánchez PJ, Stoll BJ, Wyckoff MH, Laptook AR, Van Meurs KP, Goldberg RN, D'Angio CT, Shankaran S, DeMauro SB, Walsh MC, Peralta-Carcelen M, Collins MV, Ball MB, Hale EC, Newman NS, Profit J, Gould JB, Lorch SA, Bann CM, Bidegain M, Higgins RD; Racial/Ethnic Disparities Among Extremely Preterm Infants in the United States From 2002 to 2016. Generic Database and Follow-up Subcommittees of the Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. JAMA Netw Open. 2020 Jun 1;3(6):e206757. doi: 10.1001/jamanetworkopen.2020.6757. PMID: 32520359 [PubMed - in process]

Mukhopadhyay S, Puopolo KM, Hansen NI, Lorch SA, DeMauro SB, Greenberg RG, Cotten CM, Sánchez PJ, Bell EF, Eichenwald EC, Stoll BJ; Impact of Early-Onset Sepsis and Antibiotic Use on Death or Survival with Neurodevelopmental Impairment at 2 Years of Age among Extremely Preterm Infants. Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. J Pediatr. 2020 Jun;221:39-46.e5. doi: 10.1016/j.jpeds.2020.02.038. PMID: 32446491 [PubMed - in process]

van Heesewijk AE, Rush ML, Schmidt B, Kirpalani H, DeMauro SB. Agreement between study designs: a systematic review comparing observational studies and randomized trials of surgical treatments for necrotizing enterocolitis. J Matern Fetal Neonatal Med. 2020 Jun;33(12):1965-1973. doi: 10.1080/14767058.2018.1533948. Epub 2018 Dec 17. PMID: 3055453

DeMauro SB. Antenatal Corticosteroids-Too Much of a Good Thing? JAMA. 2020 May 19;323(19):1910-1912. doi: 10.1001/jama.2020.3935.PMID: 32427290 No abstract available.

DeMauro SB, Bann C, Flibotte J, Adams-Chapman I, Hintz SR. Cranial Ultrasound and Minor Motor Abnormalities at 2 Years in Extremely Low Gestational Age Infants. J Dev Behav Pediatr. 2020 May;41(4):308-315. doi: 10.1097/DBP.0000000000000758.PMID: 31880687

Harmon HM, Jensen EA, Tan S, Chaudhary AS, Slaughter JL, Bell EF, Wyckoff MH, Hensman AM, Sokol GM, DeMauro SB; Timing of postnatal steroids for bronchopulmonary dysplasia: association with pulmonary and neurodevelopmental outcomes. Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. J Perinatol. 2020 Feb 4. doi: 10.1038/s41372-020-0594-4. [Epub ahead of print] PMID: 32020038 

2019

Jensen EA, Dysart K, Gantz MG, McDonald S, Bamat NA, Keszler M, Kirpalani H, Laughon MM, Poindexter BB, Duncan AF, Yoder BA, Eichenwald EC, DeMauro SB. The Diagnosis of Bronchopulmonary Dysplasia in Very Preterm Infants. An Evidence-based Approach. Am J Respir Crit Care Med. 2019 Sep 15;200(6):751-759. PMID: 30995069.

Natarajan G, Shankaran S, Nolen TL, Sridhar A, Kennedy KA, Hintz SR, Phelps DL, DeMauro SB, Carlo WA, Gantz MG, Das A, Greenberg RG, Younge NE, Bliss JM, Seabrook R, Sánchez PJ, Wyckoff MH, Bell EF, Vohr BR, Higgins RD. Neurodevelopmental Outcomes of Preterm Infants With Retinopathy of Prematurity by Treatment. Pediatrics. 2019 Jul 23. pii: e20183537. doi: 10.1542/peds.2018-3537. [Epub ahead of print]

Edwards L, Cotten CM, Smith PB, Goldberg R, Saha S, Das A, Laptook AR, Stoll BJ, Bell EF, Carlo WA, D'Angio CT, DeMauro SB, Sanchez PJ, Shankaran S, Van Meurs KP, Vohr BR, Walsh MC, Malcolm WF; Eunice Kennedy Shriver National Institute of Child Health and Human Development. Inadequate oral feeding as a barrier to discharge in moderately preterm infants. J Perinatol. 2019 Jul 11. doi: 10.1038/s41372-019-0422-x. [Epub ahead of print]

Brady JM, Zhang H, Kirpalani H, DeMauro SB. Living with Severe Bronchopulmonary Dysplasia-Parental Views of Their Child's Quality of Life. J Pediatr. 2019 Apr;207:117-122. doi: 10.1016/j.jpeds.2018.10.001. Epub 2018 Nov 5. PMID: 30404737 [PubMed - indexed for MEDLINE]

DeMauro SB, Jensen E, Bann C, Bell E, Hibbs AM, Hintz S, Lorch S: Home Oxygen and 2-Year Outcomes of Preterm Infants with Bronchopulmonary Dysplasia. Pediatrics e-pub ahead of print, April 2019.

DeMauro SB, Bellamy SL, Fernando M, Hoffmann J, Gratton T, Schmidt B; PROP Investigators. Patient, Family, and Center-Based Factors Associated with Attrition in Neonatal Clinical Research: A Prospective Study. Neonatology. 2019 Mar 5;115(4):328-334. doi: 10.1159/000494105. [Epub ahead of print]

Brumbaugh JE, Sridhar A, Bell EF, Hansen HI, Carlo WA, DeMauro SB, et al: The Tiniest Babies: Outcomes of Extremely Preterm Infants with Birth Weight Less than 400 Grams. JAMA Pediatrics e-pub ahead of print, March 2019.

2018

van Heesewijk AE, Rush ML, Schmidt B, Kirpalani H, DeMauro SB: Agreement between study designs: A systematic review comparing observational studies and randomized trials of surgical treatments for necrotizing enterocolitis. Journal of Maternal-Fetal & Neonatal Medicine Page: 1-9, December 2018.

Guttmann K, Flibotte J, DeMauro SB: Parental Perspectives on Diagnosis and Prognosis of NICU Graduates with Cerebral Palsy. Journal of Pediatrics 203: 156-162, December 2018.

Chawla S, Natarajan G, Chawdhury D, Das A, Walsh M, Bell EF, Laptook AR, Van Meurs K, D'Angio CT, Stoll BJ, DeMauro SB Shankaran S: Neonatal Morbidities among Moderately Preterm Infants Exposed to Antenatal Corticosteroids. American Journal of Perinatology 35(12): 1213-1221, October 2018.

Phelps DL, Watterberg KL, Nolen TL, Cole CC, Cotten CM, DeMauro SB, et al for the Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network: Effects of Myo-inositol on Type 1 Retinopathy of Prematurity Among Preterm Infants <28 Weeks' Gestational Age: A Randomized Clinical Trial. Journal of the American Medical Association 320(16): 1649-1658, October 2018.

Jensen EA, Foglia EE, Dysart KC, Simmons RA, Aghai ZH, Cook A, Greenspan JS, DeMauro SB. Adverse effects of small for gestational age differ by gestational week among very preterm infants. Arch Dis Child Fetal Neonatal Ed. 2018 May 5. pii: fetalneonatal-2017-314171. doi: 10.1136/archdischild-2017-314171. [Epub ahead of print]

DeMauro SB, Schmidt B. Comparing Like with Like When Reporting Neurodevelopmental Outcomes after Preterm Birth. J Pediatr. 2018 Mar 15. pii: S0022-3476(18)30066-0. doi: 10.1016/j.jpeds.2018.01.042. [Epub ahead of print] No abstract available. PMID: 29551315 [PubMed - as supplied by publisher]

2017

Jensen EA, Foglia EE, Dysart KC, Aghai ZH, Cook A, Greenspan JS, DeMauro SB. Car Seat Tolerance Screening in the Neonatal Intensive Care Unit: Failure Rates, Risk Factors, and Adverse Outcomes. J Pediatr. 2017 Dec 18. pii: S0022-3476(17)31503-2. doi: 10.1016/j.jpeds.2017.11.010. [Epub ahead of print]

James J, Munson D, DeMauro SB, Langer JC, Dworetz AR, Natarajan G, Bidegain M, Fortney CA, Seabrook R, Vohr BR, Tyson JE, Bell EF, Poindexter BB, Shankaran S, Higgins RD, Das A, Stoll BJ, Kirpalani H; Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. Outcomes of Preterm Infants following Discussions about Withdrawal or Withholding of Life Support. J Pediatr. 2017 Nov;190:118-123.e4. doi: 10.1016/j.jpeds.2017.05.056. [Epub ahead of print]

Shankaran S, Saha S, Laptook A, Das A, Higgins R, Stoll BJ, Bell EF, Carlo WA, D'Angio C, DeMauro SB, Sanchez P, Van Meurs K, Vohr B, Bewman N, Hale E, Walsh M: Antecedents and Outcomes of Abnormal Cranial Imaging in Moderately Preterm Infants. submitted, Journal of Pediatrics February 2017.

Robinson A, Flibotte J, Kaplan SL, DeMauro SB: Lenticulostriate Vasculopathy and Neurodevelopmental Outcomes in Preterm Infants: A Systematic Review. e-pub ahead of print, American Journal of Perinatology February 2017.

Gray MM, Medoff-Cooper B, Enlow EM, Mukhopadhyay S, DeMauro SB: Every 3 versus Every 6 Hour Oral Feeding in Preterm Infants: A Randomized Clinical Trial. Acta Pediatrica 106(2): 236-241, February 2017 Notes: First author neonatal fellow.

2015

Foglia EE, DeMauro SB, Dysart K, Kirpalani H. When has enough evidence accumulated to change neonatal practice? Semin Fetal Neonatal Med. 2015 Dec;20(6):424-30. doi: 10.1016/j.siny.2015.09.003. Epub 2015 Oct 4.

Stoll BJ, Hansen NI, Bell EF, Walsh MC, Carlo WA, Shankaran S, Laptook AR, Sánchez PJ, Van Meurs KP, Wyckoff M, Das A, Hale EC, Ball MB, Newman NS, Schibler K, Poindexter BB, Kennedy KA, Cotten CM, Watterberg KL, D'Angio CT, DeMauro SB, Truog WE, Devaskar U, Higgins RD; Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. Trends in Care Practices, Morbidity, and Mortality of Extremely Preterm Neonates. JAMA. 2015 Sep 8;314(10):1039-1051. doi: 10.1001/jama.2015.10244.

Jensen EA, Lorch SA. Effects of a Birth Hospital's Neonatal Intensive Care Unit Level and Annual Volume of Very Low-Birth-Weight Infant Deliveries on Morbidity and Mortality. JAMA Pediatr. 2015 Aug 3;169(8):e151906. doi: 10.1001/jamapediatrics.2015.1906. Epub 2015 Aug 3. PMID: 26237466

Foglia EE, Nolen TL, DeMauro SB, Das A, Bell EF, Stoll BJ, Schmidt B; Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. Short-term Outcomes of Infants Enrolled in Randomized Clinical Trials vs Those Eligible but Not Enrolled. JAMA. 2015 Jun 16;313(23):2377-2379. doi: 10.1001/jama.2015.5734. No abstract available. PMID: 26080344

Bamat N, Ghavam S, Liu Y, DeMauro SB, Jensen EA, Roberts R, Yoder BA, Kirpalani H. Reliability of a Non-Invasive Measure of Ventilation/Perfusion Mismatch for Bronchopulmonary Dysplasia. Ann Am Thorac Soc. 2015 Feb 25. [Epub ahead of print] PubMed PMID: 25714998.

2014

DeMauro SB, Cairnie J, D’Ilario J, Kirpalani H, Schmidt B. Honesty, Trust, and Respect During Consent Discussions in Neonatal Clinical Trials. Pediatrics. 2014 Jul;134(1):e1-3. Epub 2014 Jun 9.

DeMauro S, D’Agostino J, Bann C, Bernbaum J, Gerdes M, Bell E, Carlo W, D’Angio C, Das A, Higgins R, Hintz S, Laptook A, Natarajan G, Nelin L, Poindexter B, Sanchez P, Shankaran S, Stoll B, Truog W, Van Meurs K, Vohr B, Walsh M, Kirpalani H. Developmental outcomes of very preterm infants with tracheostomies. J Pediatr. 2014. [Epub ahead of print]

Foglia EE, Kirpalani H, DeMauro SB. Long-Term Respiratory Morbidity in Preterm Infants: Is Noninvasive Support in the Delivery Room the Solution? J Pediatr. 2014 May 16. pii: S0022-3476(14)00347-3. doi: 10.1016/j.jpeds.2014.04.018. [Epub ahead of print]

Jensen EA, DeMauro SB, Kirpalani H. Has enough evidence accumulated to consider CPAP a first-line standard of care in developing countries? Arch Dis Child Fetal Neonatal Ed. 2014;99(6):F443-F444.

2013

DeMauro SB, Cohen MS, Ratcliffe SJ, Abbasi S, Schmidt B. Serial echocardiography in very preterm infants: a pilot randomized trial. Acta Paediatr. 2013 Nov;102(11):1048-53.

DeMauro SB, Douglas E, Karp K, Schmidt B, Patel J, Kronberger A, Scarboro R, Posencheg M. Improving delivery room management for very preterm infants. Pediatrics. 2013 Oct;132(4):e1018-25.

Sherenian M, Profit J, Schmidt B, Suh S, Xiao R, Zupancic JA, DeMauro SB. Nurse-to-patient ratios and neonatal outcomes: a brief systematic review. Neonatology. 2013;104(3):179-83.

Demauro SB, Dysart K, Kirpalani H. Stopping the swinging pendulum of postnatal corticosteroid use. J Pediatr. 2014 Jan;164(1):9-11.

Abstracts

2016

Jensen E, Foglia E, Dysart K, Aghai Z, Cook A, Greenspan J, DeMauro S: Size Matters: Small for Gestational Age and Risk of Morbidity and Mortality in Extremely Preterm Infants. European Journal of Pediatrics, Abstract 378 175(11): 1524, November 2016.

Jensen E, DeMauro S, Foglia E, Greenspan J, Aghai Z, Cook A, Dysart K: Evolving Systemic Postnatal Corticosteroid Use and Its Association with Bronchopulmonary Dysplasia Rates over 15 Years in a Large US Cohort. European Journal of Pediatrics, Abstract 277 175(11): 1485, November 2016.

DeMauro S, Sharp M, Abbasi S, Gerdes M: Not as Smart as We Think They Are? Misclassification of Developmental Delay During Early Childhood. European Journal of Pediatrics, Abstract 545 175(11): 1590-1591, November 2016.

2015

van Heesewijk A, Rush MK, Kirpalani H, DeMauro SB: Understanding the Available Data: A Comparison of Observational Studies and Randomized Trials of Surgical Treatments for Necrotizing Enterocolitis. Society for Pediatric Research Abstract 3847.50, May 2015.

Handzel J, McFadden K, Zhang H, DeMauro SB, Kirpalani H: Living with Severe Bronchopulmonary Dysplasia - Parental Views of Their Children's Quality of Life. Society for Pediatric Research Abstract 751981, May 2015.Handzel J, Pouppirt N, Bernbaum J, D'Agostino J, Gerdes M, Hoffman-Craven C, Hurt H, Kirpalani H, DeMauro SB: Why do Children with Severe BPD not attend Neonatal Follow Up Care? - Parental Views of Barriers. Eastern Society for Pediatric Research Abstract 750923, March 2015.

Handzel J, Pouppirt N, Bernbaum J, D'Agostino J, Gerdes M, Hoffman-Craven C, Hurt H, Kirpalani H, DeMauro SB: Why do Children with Severe BPD not attend Neonatal Follow Up Care? - Parental Views of Barriers. Eastern Society for Pediatric Research Abstract 750923, March 2015.

Handzel J, McFadden K, Zhang H, DeMauro SB, Kirpalani H: Living with Severe Bronchopulmonary Dysplasia - Parental Views of Their Children's Quality of Life. Eastern Society for Pediatric Research Abstract 751981, March 2015.

Books

Chapters

2018

DeMauro SB, Hintz SR: Risk Assessment and Neurodevelopmental Outcomes. Avery's Diseases of the Newborn, 10th Edition. Gleason & Juul (eds.). Elsevier, Chapter 66, 2018.

Colaizy TT, DeMauro SB, McNelis KM, Poindexter BB: Enteral Nutrition for the High-Risk Infant. Avery's Diseases of the Newborn, 10th Edition. Gleason & Juul (eds.). Elsevier, Chapter 68, 2018.

Brady J, DeMauro SB: Developmental Outcomes of High Risk Infants. Rudolph's Textbook of Pediatrics, 23rd Edition. Kline M, Editor-in-Chief. (eds.). McGraw-Hill Education, 2018.

2015

DeMauro SB, Gray MM: Feeding Intervals in Very Low Birth-Weight Infants in Intensive or Critical care. Diet and Nutrition in Critical Care. Rajendram R, Patel VB, Preedy VR (eds.). Springer, Page: 779-794, 2015 Notes: Chapter 58.

DeMauro SB, Akinbi H, Maschhoff K: Tracheostomy for the Neonate and Infant - Indications, Complications, Timing and Outcomes. Disorders of the Neonatal Airway: Fundamentals for Practice. Lioy J, Sobol S (eds.). Springer, Page: 263-279, 2015 Notes: DOI 10.1007/978-1-4939-1610-8_25.

2011

DeMauro SB. Introduction to principles of the radiological investigation of the neonate. in: Kirpalani H, Epelman M, Mernagh JR, editors. Imagine of the newborn. 2nd ed. New York: Cambridge University Press; 2011.

DeMauro SB. Evidence based use of diagnostic imaging: reliability and validity. in: Kirpalani H, Epelman M, Mernagh JR, editors. Imagine of the newborn. 2nd ed. New York: Cambridge University Press; 2011.

Posters and Presentations

2017

Rysavy M, Colaizy T, Bann C, Hintz SR, DeMauro SB, Duncan AF, Peralta-Carcelen AM, Bell E, and the NICHD NRN: Expanding the Frame - Outcomes Following Extremely Premature Birth Beyond Neurodevelopmental Impairment. Poster Presentation, Society for Pediatric Research, San Francisco, CA May 2017.

Lioy J, Hopkins E, Moran K, Stow J, Javia L, DeMauro SB: Resource Utilization among Children who underwent Tracheostomy before 1 Year of Age. Platform Presentation, Society for Pediatric Research, San Francisco, CA May 2017.

Lioy J, Hopkins E, Moran K, Stow J, Javia L, DeMauro SB: Survival and Decannulation after Infant Tracheostomy. Poster Presentation, Society for Pediatric Research, San Francisco, CA May 2017.

Jensen EA, Greenspan J, Aghai Z, DeMauro SB, Dysart K: Incidence, Risk Factors, and All-Cause Death or Hospital Readmission associated with Infant Car Seat Challenge Failure: A Multicenter Study. Poster Presentation, Society for Pediatric Research, San Francisco, CA May 2017.

Guttmann K, Flibotte J, DeMauro SB: Parental Perspectives on Diagnosis and Prognosis of NICU Graduates with Cerebral Palsy. Poster Presentation, Society for Pediatric Research, San Francisco, CA May 2017.

Foglia EE, Carper B, Gantz M, DeMauro SB, Lakshminrusimha S, Walsh M, Schmidt B: Association between changes in pulse oximetry alarm policies for extremely preterm infants and neonatal mortality or morbidity. Poster Presentation, Society for Pediatric Research, San Francisco, CA May 2017.

Dysart KC, Greenspan J, Aghai Z, DeMauro SB, Aghai Z, Jensen EA: Non-Invasive Respiratory Support Modalities and Their Association with BPD Risk Among Very Preterm Infants: Does Times Spent on Each Matter? Platform Presentation, Society for Pediatric Research, San Francisco, CA May 2017.

Pouppirt N, Martin V, Pagnotto-Hammitt L, Spittle A, Flibotte J, DeMauro SB: The General Movements Assessment in Infants with Hypoxic Ischemic Encephalopathy. Poster Presentation, Eastern Society for Pediatric Research, Philadelphia, PA March 2017.

Martin V, Brady J, Wade K, Gerdes M, DeMauro SB: Timing of Early Intervention Multidisciplinary Evaluations in Infants with Severe Bronchopulmonary Dysplasia. Poster Presentation, Eastern Society for Pediatric Research, Philadelphia, PA March 2017.

Lioy J, Hopkins E, Moran K, Stow J, Javia L, DeMauro SB: Resource Utilization among Children who underwent Tracheostomy before 1 Year of Age. Platform Presentation, Eastern Society for Pediatric Research, Philadelphia, PA March 2017.

Lioy J, Hopkins E, Moran K, Stow J, Javia L, DeMauro SB: Survival and Decannulation after Infant Tracheostomy. Poster Presentation, Eastern Society for Pediatric Research, Philadelphia, PA March 2017.

Guttmann K, Flibotte J, DeMauro SB: Parental Perspectives on Diagnosis and Prognosis of NICU Graduates with Cerebral Palsy. Poster Presentation, Eastern Society for Pediatric Research, Philadelphia, PA March 2017.

DeMauro SB, Nilan KA, D'Agostino J, Wang Y, Zhang H: Two-year Outcomes of Children with Severe Chronic Lung Disease Referred to a Quaternary Hospital. Poster Presentation, Eastern Society for Pediatric Research, Philadelphia, PA March 2017.

2016

Murthy S, Cook A, Gonzalez A, Dysart K, DeMauro SB, Foglia E, Jensen K, Greenspan J, Aghai ZH: Trends in Medical Therapy for Gastroesophageal Reflux in VLBW Infants: Impact on Late Onset Sepsis and Necrotizing Enterocolitis. Poster presentation, Society for Pediatric Research, Baltimore, MD Abstract: 754520, May 2016.

Keller RL, Moore PE, Feng R, Shaw PA, Bellamy S, DeMauro SB, Ferkol T, Hardie W, Rogers E, Stevens T, Voynow J: Perinatal Clinical Factors or Bronchopulmonary Dysplasia (BPD) Predict Post-Prematurity Respiratory Disease (PRD) in Extremely Low Gestational Age newborns (ELGAN). Poster presentation, Society for Pediatric Research, Baltimore, MD May 2016.

Harmon H, Chaudhary A, Jensen E, Tan S, Sokoll G, DeMauro SB: Timing of Postnatal Steroids for Bronchopulmonary Dysplasia (BPD): Association with Pulmonary and Neurodevelopmental Outcomes. Poster presentation, Society for Pediatric Research, Baltimore, MD Abstract 750331, May 2016.

Flannery DD, Dysart K, DeMauro SB, Jensen E, Foglia E, Cook A, Gonzalez A, Greenspan J, Aghai ZH: Neonatal Outcomes of Very-Low-Birth-Weight Infants Born to Mothers with Hypertensive Disorders. Poster Presentation, Society for Pediatric Research, Baltimore, MD Abstract: 755005, May 2016.

Flannery DD, Dysart K, DeMauro SB, Jensen E, Foglia E, Cook A, Gonzalez A, Greenspan J, Aghai ZH: Neonatal Outcomes of Multiple Gestation Very-Low-Birth-Weight Infants Born After Assisted Fertility. Poster presentation, Society for Pediatric Research, Baltimore, MD Abstract: 753961, May 2016.

DeMauro SB, Flibotte J, Adams-Chapman I, Hintz SR: Minor Motor Abnormalities at 2 Years in Extremely Low Gestational Age Infants: Risk Factors and Outcomes. Poster presentation, Society for Pediatric Research, Baltimore, MD Abstract 750606, May 2016 Notes: SPR Pub#2886.662.

DeMauro SB, Bellamy S, Fernando M, Hoffman J, Gratton T, Schmidt B: Predictors of Attrition in Longitudinal Neonatal Clinical Research. Poster presentation, Society for Pediatric Research, Baltimore, MD Abstract 751016, May 2016.

Brady JM, Gerdes M, Panitch H, Kirpalani H, DeMauro SB: Validity of a Phone Developmental Screener for Children with severe Bronchopulmonary Dysplasia (sBPD). Poster presentation, Society for Pediatric Research, Baltimore, MD Abstract 751220, May 2016.

North K, Kim A, Lioy, J, DeMauro S, Javia L: Utilization of Outpatient Subspecialty Care By Infants with Tracheostomies. Poster presentation, Society for Pediatric Research, Baltimore, MD April 2016.

Jensen EA, Foglia E, Dysart K, Aghai ZH, Cook A, Greenspan JS, DeMauro SB: Size Matters: Small for Gestational Age and Risk of Morbidity and Mortality in Extremely Preterm Infants. Platform presentation by collaborator, Society for Pediatric Research, Baltimore, MD Abstract 754939, April 2016.

Jensen E, Demauro SB, Foglia E, Greenspan JS, Aghai Z, Cook A, Dysart K: Changing Use of Systemic Corticosteroids(PC) and the Relationship to Bronchopulmonary Dysplasia(BPD) Rates over 15 Years Platform presentation by collaborator, Society for Pediatric Research, Baltimore, MD Abstract: 755342, April 2016.

DiPrisco B, Kim A, Lioy J, Javia L, DeMauro S: Hospital Readmission Rates for Children with Tracheostomy Placement Prior to One Year of Age. Poster presentation, Society for Pediatric Research, Baltimore, MD April 2016.

Murthy S, Cook A, Gonzalez A, Dysart K, DeMauro SB, Foglia E, Jensen E, Greenspan J, Aghai ZH: Trends in Medical Therapy for Gastroesophageal Reflux in VLBW Infants: Impact on Late Onset Sepsis and Necrotizing Enterocolitis Poster presentation, Eastern Society for Pediatric Research, Philadelphia, PA Abstract 754520, March 2016.

Flannery DD, Dysart K, DeMauro SB, Jensen E, Foglia E, Cook A, Gonzalez A, Greenspan J, Aghai, ZH: Neonatal Outcomes of Multiple Gestation Very-Low-Birth-Weight Infants Born After Assisted Fertility. Poster presentation, Eastern Society for Pediatric Research, Philadelphia, PA Abstract: 753961, March 2016.

Flannery DD, Dysart K, DeMauro SB, Jensen E, Foglia E, Cook A, Gonzalez A, Greenspan J, Aghai ZH: Neonatal Outcomes of Very-Low-Birth-Weight Infants Born to Mothers with Hypertensive Disorders  Poster presentation, Eastern Society for Pediatric Research, Philadelphia, PA Abstract: 755005, March 2016.

2015

North K, Kim A, Lioy J, Javia L, DeMauro S: Utilization of Outpatient Subspecialty Care by Infants with Tracheostomies. Platform presentation by collaborator, poster presentation, American Academy of Pediatrics National Conference, Washington, DC October 2015.

North K, Kim A, Lioy J, DeMauro S: Utilization of Outpatient Subspecialty Care by Infants with Tracheostomies. CHOP Research Poster Day, Philadelphia, PA February 2015.

DiPrisco B, Kim A, Lioy J, DeMauro S: Hospital Readmission Rates for Children with Tracheostomy Placement Prior to One Year of Age. CHOP Research Poster Day February 2015.

Invited Lectures

2016

DeMauro SB. "Neonatal Clinical Trials and Neurodevelopmental Outcome Assessment in the NICHD Neonatal Research Network," Advances in Neonatal-Perinatal Medicine, Philadelphia, PA. Oct, 2016.

DeMauro SB. "Using Developmental Outcomes in Neonatal Clinical Trials: The Good, The Bad, and the Ugly," Columbia University Medical Center, Division of Neonatology, New York, NY. Sep, 2016.

DeMauro SB. "Neonatal Follow-up and Neurodevelopmental Outcomes," The Fetus and the Newborn: Advancing Neurologic Care to Improve Outcomes, The Children's Hospital of Philadelphia, Philadelphia, PA. Jun, 2016.

DeMauro SB. "An Evidence Based Approach to Tracheostomy for the Chronically Ventilated Newborn," Pediatrics Grand Rounds, Christiana Care Hospital, Christiana, DE. Feb, 2016.

DeMauro SB. "An Evidence Based Approach to Tracheostomy for the Chronically Ventilated Newborn," Nationwide Children's Hospital, Columbus, OH. Jan, 2016.

2015

DeMauro SB. "An Evidence Based Approach to Tracheostomy for the Chronically Ventilated Newborn," Third Annual Evidence Based Neonatology (EBNEO) Meeting, Philadelphia, PA. Sep, 2015.

DeMauro SB. "Measures of Central Tendency and Bivariate Testing: What does one have to do with the other?" Thomas Jefferson University Hospital, Philadelphia, PA. Feb, 2015.

Awards and Honors

2016, 2018, Early Career Faculty Honor Roll, CHOP

2015, Patient-Oriented Research Award CHOP Research Poster Day (for Fellow's research)

2014, Istvan Seri Award for Excellence in Teaching, CHOP

2012, Young Investigator Award, Perinatal Research Society

2012, McCabe Pilot Project Award, The Perelman School of Medicine, University of Pennsylvania

2011, UPHS Quality and Patient Safety Award, Honorable Mention for "Improvement of Intensive Care Nursery Admission Temperature for Infants with a Birthweight of < 1250g"

2011, Patient-Oriented Research Award, CHOP Research Poster Day

2010, Kristine Sandberg Knisely Lectureship, CHOP

2010, Young Investigator of the Year Award Finalist ,Eastern Society for Pediatric Research

2010, 2012, 2014, 2016, Loan Repayment Program award recipient National Institutes of Health

2009, Nominated Participant, 21st Annual NICHD Aspen Conference on Maternal-Fetal-Neonatal-Reproductive Medicine

2009, Patient-Oriented Research Award, CHOP Research Poster Day

2009, Travel Award, Eastern Society for Pediatric Research

2009, Young Investigator's Travel Award, Pediatric Academic Societies

2007, Cum Laude Society "Distinguished Alumna" Invited Lecture, Oak Knoll School, Summit, NJ

2004, Pamela C. Champe and Richard A. Harvey Award in Biochemistry, UMDNJ-Robert Wood Johnson Medical School

2003, Certificate of Excellence in Teaching Award, UMDNJ-Robert Wood Johnson Medical School

2003, Compass Lecture in Medical Biochemistry, Invited Lecture: Congenital Adrenal Hyperplasia: the Link between Biochemistry and Clinical Outcome, UMDNJ-Robert Wood Johnson Medical School

2003, Gold Humanism Honor Society, UMDNJ-Robert Wood Johnson Medical School

Editorial and Academic Positions

Editorial positions

2017-present, Co-Editor, Clinics in Perinatology: Long-term Neurodevelopment Outcomes of the NICU Graduate

Ad Hoc Journal Reviewer

JAMA
Pediatrics
Journal of Pediatrics
Journal of Neonatal-Perinatal Medicine
American Journal of Perinatology
Pediatric Research
Journal of Perinatology
BMC Pediatrics
Journal of Developmental and Behavioral Pediatrics

Ad Hoc Abstract Reviewer

Society for Pediatric Research
Eastern Society for Pediatric Research

Academic and Institutional Committees

2010-present, Institute for Translational Medicine and Therapeutics (CTRC-ITMAT), UPenn
2010-present, Division of Neonatology Scientific Review Committee

Leadership and Memberships

Memberships in Professional Organizations

2011-present, Society for Pediatric Research
 - 2019-present, SPR Fellows Clinical Research Awards Selection Committee
2008-present, American Academy of Pediatrics, Section on Perinatal Pediatrics
2004-present, American Academy of Pediatrics