Health Information

Paraganglioma-Pheochromocytoma Syndrome Resources

Clinical services

Adults who have hereditary paraganglioma-pheochromocytoma or who would like more information about hereditary paraganglioma-pheochromocytoma may contact the Medical Genetics Team at the Hospital of the University of Pennsylvania online at http:www.uphs.upenn.edu/penngenn or by calling 1-800-789-PENN(7366). 

Resources

PheoPara Alliance
P.O. Box 504
Arlington, VA 22216
Phone: 1-917-318-3560
E-mail: administrator@pheo-para-alliance.org
http://www.pheo-para-alliance.org/

Pheochromocytoma Organization
http://www.pheochromocytoma.org/sys-tmpl/door/

GeneReviews: Hereditary Paraganglioma-Pheochromocytoma syndromes
http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=paragangliomas 

References

Gimenez-Roqueplo, AP, et al. (2006). Phaeochromocytoma, new genes and screening strategies. Clinical Endocrinology, 65, 699-705.

Hensen, EF, & Bayley, J. (2010). Recent advances in the genetics of SDH-related paraganglioma and pheochromocytoma. Familial Cancer, Nov 17.

Young, WF Jr. (2008). Endocrine hypertension. In: Kronenberg HM, Melmed S, Polonsky KS, Larsen PR (eds) Williams Textbook of Endocrinology, 11 ed. Saunders Elsevier, Philadelphia, PA, pp 505-37.

Related information

Overview of paraganglioma-pheochromocytoma (PGL-PCC) syndrome
Paraganglioma-pheochromocytoma (PGL-PCC) syndrome diagnosis
Paraganglioma-pheochromocytoma (PGL-PCC) syndrome cancer risks and screenings
 

Reviewed by: Kim Nichols, MD, The Children's Hospital of Philadelphia
Date: January 2011

 

  • Print
  • Share

Contact Us

Doctors that treat this condition