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Paraganglioma-Pheochromocytoma Syndrome Resources

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Adults who have hereditary paraganglioma-pheochromocytoma or who would like more information about hereditary paraganglioma-pheochromocytoma may contact the Medical Genetics Team at the Hospital of the University of Pennsylvania online at or by calling 1-800-789-PENN(7366). 


PheoPara Alliance
P.O. Box 504
Arlington, VA 22216
Phone: 1-917-318-3560

Pheochromocytoma Organization

GeneReviews: Hereditary Paraganglioma-Pheochromocytoma syndromes 


Gimenez-Roqueplo, AP, et al. (2006). Phaeochromocytoma, new genes and screening strategies. Clinical Endocrinology, 65, 699-705.

Hensen, EF, & Bayley, J. (2010). Recent advances in the genetics of SDH-related paraganglioma and pheochromocytoma. Familial Cancer, Nov 17.

Young, WF Jr. (2008). Endocrine hypertension. In: Kronenberg HM, Melmed S, Polonsky KS, Larsen PR (eds) Williams Textbook of Endocrinology, 11 ed. Saunders Elsevier, Philadelphia, PA, pp 505-37.

Related information

Overview of paraganglioma-pheochromocytoma (PGL-PCC) syndrome
Paraganglioma-pheochromocytoma (PGL-PCC) syndrome diagnosis
Paraganglioma-pheochromocytoma (PGL-PCC) syndrome cancer risks and screenings

Reviewed by: Kim Nichols, MD, The Children's Hospital of Philadelphia
Date: January 2011


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