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Our Foundation: A Partnership
with Families
We are committed to providing the best care and services to you and your
child. The following information describes the philosophy that underlies
this commitment, the components of our family-centered services and the
rights of our patients and their family members.
Our Philosophy of Care
The staff of The Children's Hospital of Philadelphia
respects each family's values, needs, cultures, resources and strengths.
We strive to provide the highest quality of care by successfully blending
patient care, education and research. The following beliefs serve as the
foundation of our care and partnership with families.
- We are committed to providing care and services that are guided by
the needs of families and are perceived as flexible, accessible, responsive
and sensitive. Therefore, we will develop systems that enable staff
to respond to family preferences and priorities in a timely and creative
manner.
- We recognize that families provide a constant source of support in
the child's life. While we, as caring professionals, play an important
role, families maintain the central role.
- We turn to families to define their members, understanding that each
family has different values and unique ways of functioning.
- We value the importance of the family's role in educating staff and
future health care providers.
- We welcome families' participation in the planning and evaluation
of new and existing programs and policies of the institution.
- We believe that care should be provided by an identifiable health
care team that includes families as an integral part of developing a
plan and caring for their children. The family-professional partnership
is based on mutual respect for the understanding that each brings to
the situation.
- We strive to provide coordinated care and linkages between our services
and the family's community, including schools, local physicians, services
and agencies.
- Approaches to care will be built on the family's strengths. We value
exploration of what they can and cannot do. We will be accepting about
strengths and needs, and recognize that the stresses families face can
influence their ability to cope. We strive to promote family competence
through knowledge and skills. In all cases, we believe that competence
is enhanced by sharing complete information.
- We are committed to creating a healing, supportive environment that
respects privacy. We believe that all oral and written communication
must respect the family's right to confidentiality.
- We recognize that care is a human undertaking. When there are differences
of opinion, we will try to seek quick and respectful resolution among
ourselves and with families.
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Key Elements of Family Centered
Care
- Recognizing that the family is the constant in the child's life
- Facilitating family/professional collaboration at all levels of service
delivery
- Honoring racial, ethnic, cultural, spiritual, and socioeconomic diversity
of families
- Recognizing family strengths and respecting different ways of coping
- Encouraging family-to-family support
- Sharing with families, on a continuing and supportive basis, complete
and unbiased information
- Understanding and incorporating the developmental needs of infants,
children and adolescents into the delivery system
- Implementing policies and programs that provide emotional and financial
support
- Designing accessible service systems that are flexible, culturally
competent and responsive to family-identified needs
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Patients' Bill of Rights
The Children's Hospital of Philadelphia is committed
to the basic rights of the children and families it serves. Those rights
apply to the patient and/or parents and/or guardian, as appropriate for
the age and level of understanding of the child. These rights include:
- The right to respectful care given by competent personnel.
- The right to know the identity of those providing
treatment.
- The right to every consideration of privacy concerning
medical care. Case discussions, consultations, examinations, and treatments
are confidential and are to be conducted with respect and discretion.
- The right to confidentiality of medical records except
as otherwise provided by law or third-party contractual arrangements.
- The right to be informed of Hospital rules and regulations
applicable to the patient's conduct.
- The right to expect emergency procedures to be implemented
without unnecessary delay.
- The right to good quality care and high professional
standards that are continually maintained and reviewed.
- The right to full information, in layman's terms,
concerning diagnosis, treatment and prognosis, including information
about alternative treatments and possible complications. When it is
not medically advisable to give such information to the patient, the
information shall be given on the patient's behalf to the patient's
next-of-kin or other appropriate person
- The right to give informed consent prior to the start
of any procedure or treatment, except in emergency situations. Informed
consent is defined in Section 103 of the Health Care Services Malpractice
Act (40 P.S. 1301.103).
- The right to be advised when a physician is considering
the patient as part of a medical care research program or donor program,
and to give informed consent prior to actual participation in such a
program. In the event that the patient is unable to give informed consent,
a legally responsible party shall exercise these rights on the patient's
behalf. The patient or the legally responsible party may, at any time,
refuse to continue in such a program to which he or she has previously
given informed consent.
- The right to refuse any drug, treatment or procedure
offered by the Hospital, to the extent permitted by law, and the right
to be informed by a physician of the medical consequences of such refusal
of any drug, treatment or procedure. If such refusal prevents adequate
medical care, the relationship with the patient may be terminated upon
reasonable notice.
- The right to assistance in obtaining consultation
with another physician at the patient's request and own expense.
- The right to impartial access to treatment and care
without regard to race, color, sex, national origin, religion, sexual
orientation or source of payment.
- The right to access to all information contained
in the medical record, unless such access is specifically restricted
by the attending physician for medical reasons or is prohibited by law.
- The right to communication with others outside the
Hospital and access to an interpreter if necessary.
- The right to expect good management techniques to
be implemented within the Hospital, considering effective use of the
time of the patient and avoiding unnecessary personal discomfort of
the patient.
- The right to an explanation for transfer to another
facility, including the need for an alternative to such transfer. The
institution to which the patient is to be transferred must first have
accepted the patient for transfer.
- The right to know the Hospital charges and to examine
and receive a detailed explanation of the bill.
- The right to full information and counseling on the
availability of known financial resources for health care.
- The right to expect that information concerning continuing
health care requirements following discharge and the means for meeting
them will be provided.
- The right of access to an individual or agency authorized
to act on the patient's behalf to assert or protect the rights herein
set forth.
- The right to be informed of these rights at the earliest possible moment during the course of hospitalization.
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If any part of your child's hospitalization does not
meet your expectations, or if you have questions about your child's care,
please feel free to speak with the nurse manager on your child's unit.
If you need additional help, please call (215) 590-1951 from 8:30 a.m.
to 5 p.m. This number will put you in touch with a member of our administrative
staff, who will be able to meet with you or speak with you by telephone
to resolve your concern.
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