22q and You Center

Resources for Families

As you, your child, and your entire family struggle with what the chromosome 22 deletion diagnosis means for you, you'll not only want to learn everything you can about the disorder — you'll probably also want to reach out to others who have faced the same problems, ask lots of questions and explore all the available information.

Fortunately, you're not alone. Many other parents and families have faced this diagnosis, and they're happy to share what they've learned. So we've gathered a list of many of the available resources (both on- and offline) here.

We hope you find these resources helpful. If you know of helpful information that hasn't been included here, please feel free to contact us.

You can also find a list of medical journal articles on the chromosome 22q11.2 deletion on our Resources for Healthcare Professionals page.

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