Resources for Families
Books
Caring for Kids with Tracheostomies, by Maxishare, a division of Seeger Health Resources, ©2003, is a 144-page manual for caregivers of children with tracheostomies. Ordering information is available at the Maxishare Web site.
Web sites
Aaron's Tracheostomy Page
This site, authored by the parent of a child who had a tracheostomy for the first four years of his life, offers a wealth of information on tracheostomy-related topics. It also features the TrachTies e-mail discussion group, a message board and networking resources for families of children with trachs.
http://www.tracheostomy.com/
RRP Foundation
The Recurrent Respiratory Papillomatosis Foundation offers information and support to children with RRP and their families. The site features a discussion forum, up-to-date information about research and advocacy efforts, a newsletter, publications, and content just for kids.
http://www.rrpf.org
Places to stay
Philadelphia Ronald McDonald HouseTM
Located at 3925 Chestnut Street, this West Philadelphia house has more than 40 guest rooms, as well as shared living rooms, kitchen, play and laundry areas. The rate is $15 per night for the first four nights and $10 after that, based on your ability to pay. The House gives priority to families who live a distance from the Hosptial. For more information or to reserve a room, call 215-387-8406.
http://www.philarmh.org/
The Penn Tower Hotel
Penn Tower Hotel is located on Civic Center Boulevard at 34th Street, just across the street from The Children's Hospital of Philadelphia. The building houses University of Pennsylvania medical offices as well as hotel rooms, and a skywalk connects the hotel to the University of Pennsylvania Medical Center, next door to Children's Hospital. It offers basic amenities including an enclosed garage. For more information or to make a reservation, call 215-387-8333.
The Hilton Inn at Penn
Located at 3600 Sansom Street, the Inn holds a AAA Four Diamond rating and is within walking distance of The Children's Hospital of Philadelphia and Center City Philadelphia. It offers a variety of amenities, including an on-site restaurant. For more information or to reserve a room, call 215-222-0200.
http://www.theinnatpenn.com/
Contact Us
- 215-590-3440
