Welcome to the Biliary Atresia Clinical Care Program at The Children's Hospital of Philadelphia (CHOP). We treat children with biliary atresia and research the cause and cure for this rare liver disease. We are committed to providing the best possible care from infancy to adulthood.
Infants with biliary atresia are found to have jaundice shortly after birth. Usually, the child seems healthy and yet the parents are told an overwhelming amount of information — much of which is frightening. Our team of caregivers are dedicated to providing state-of-the-art care at a critical and sensitive time.
Education about what to do and what to expect starts at the time you first meet us. We share our clinical and research expertise with our patients. Much information can be found by asking our physicians, nurses and care coordinators. We also provide extensive information on our website and at our education days. The Biliary Atresia Clinical Care Program is part of the Fred and Suzanne Biesecker Pediatric Liver Center, which is internationally recognized for its expertise in care of pediatric liver disease.
Although biliary atresia is rare, its geographic reach is wide. In the U.S. there are only 250-400 new cases of biliary atresia each year. Yet, at CHOP we have a long history of caring for biliary atresia. Families from across the nation and around the world come to us because of our reputation as one of the premier specialty centers for biliary atresia in the United States.
We have been caring for children with biliary atresia since the 1970s, when Morio Kasai, MD, who devised and pioneered the operation, now considered the standard treatment for the condition, came to work in Philadelphia with C. Everett Koop, MD, ScD, chair of pediatric surgery at CHOP (1948-1981) and surgeon general of the U.S. (1981-1989), and his surgical partner, Louise Schnaufer, MD.
When your child receives care here, we will provide the most up-to-date information and treatment available. Our physicians and researchers collaborate closely with other specialists at Children's Hospital and colleagues throughout the international medical community to share information and promising treatment advances.
To request an appointment or get a second opinion about your child's condition, call 1-866-KID-LIVR (1-866-543-5487).