Each diagnosis is unique, and each family finds its own way of coping. But the experience can be made a little easier by knowing that you are not alone. Some of the families treated at the Cardiac Center share their stories here to provide support to other families facing similar diagnoses.
Rushed to CHOP for emergency open heart surgery at 3 months.
Had bypass surgery to treat his aortic stenosis at 2 months.
Diagnosed with an ASD after her pediatrician heard a heart murmur at four months.
Diagnosed with an ASD and a partial anomalous pulmonary venous return at 13 years of age.
Treated for dilated cardiomyopathy at CHOP and received a heart transplant that saved her life.
Born in the Special Delivery Unit, for babies with birth defects diagnosed in the womb.
Diagnosed in utero when his mom was four months pregnant.
Diagnosed with HLHS when her Mom was five months pregnant.
Had his first open-heart surgery for HLHS when he was 4 days old.
Diagnosed with HLHS when her Mom was four months pregnant.
Born and treated at CHOP, these friends have much in common.
Had open-heart surgery at two days of age to repair his pulmonary valve.
Diagnosed with SVT and received expert treatment at CHOP.
Living with CHD as an adult and fulfilling her dream of being a mom.
Cared for TOF at CHOP since infancy. Still a patient, also a nurse.
A pulse oximetry screening detected a heart problem.
Diagnosed with TGA and born in the Special Delivery Unit.
Born with TGA and taken to CHOP a few hours after his birth.
Has been a patient of the Cardiac Center since her diagnosis with TGA as an infant.
Underwent balloon atrial septostomy soon after birth.
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