Each diagnosis is unique, and each family finds their own way of coping. But the experience can be made a little easier by knowing that you are not alone. Some of the families treated at the Cardiac Center share their stories here to provide support to other families facing similar diagnoses.
Rushed to CHOP for emergency open heart surgery at 3 months.
Diagnosed with an ASD after her pediatrician heard a heart murmur at four months.
Born in the Special Delivery Unit, for babies with birth defects diagnosed in the womb.
Diagnosed in utero when his mom was four months pregnant.
Diagnosed with HLHS when her Mom was five months pregnant.
Diagnosed with HLHS when her Mom was four months pregnant..
Had open-heart surgery at two days of age to repair his pulmonary valve.
Living with CHD as an adult and fulfilling her dream of being a mom.
Cared for TOF at CHOP since infancy. Still a patient, also a nurse.
A pulse oximetry screening detected a heart problem.
Diagnosed with TGA and born in the Special Delivery Unit.
Born with TGA and taken to CHOP a few hours after his birth.
Underwent balloon atrial septostomy soon after birth.
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