Cardiac Center

Patient Stories from the Cardiac Center

Each diagnosis is unique, and each family finds their own way of coping. But the experience can be made a little easier by knowing that you are not alone. Some of the families treated at the Cardiac Center share their stories here to provide support to other families facing similar diagnoses.

Quinn
Anomalous Left Coronary Artery

Rushed to CHOP for emergency open heart surgery at 3 months. 

Quinn's Story

 

Sara
Aortic Stenosis

Has had two open-heart surgeries at Children's Hospital.

Sarah's Story

Morgan
Atrial Septal Defect

Diagnosed with an ASD after her pediatrician heard a heart murmur at four months.

Morgan's Story

Abby
Double Inlet Left Ventricle

Diagnosed with double inlet left ventricle before birth.

Abby's Story

Brie
Heart Block

Born in the Special Delivery Unit, for babies with birth defects diagnosed in the womb.

Brie's Story

Tassos
Hypoplastic Left Heart Syndrome

Diagnosed in utero when his mom was four months pregnant.

Tassos' Story

Caila
Hypoplastic Left Heart Syndrome

Diagnosed with HLHS when her Mom was five months pregnant.

Caila's Story

Lily
Hypoplastic Left Heart Syndrome

Had her first open-heart surgery two days after birth.

Lily's Story

Maya
Hypoplastic Left Heart Syndrome

Diagnosed with HLHS when her Mom was four months pregnant..

Maya's Story

Kendall
Kawasaki Disease

Received a heart transplant at 3 years of age.

Kendall's Story

Katie
Patent Ductus Arteriosus

Diagnosed with PDA when she was three months old.

Katie's Story

Justin
Pulmonary Atresia

Had open-heart surgery at two days of age to repair his pulmonary valve.

Justin's Story

Sankirt
Pulmonary Hypertension

A successful lung transplant gave him a new life.

Sankrit's Story

Brendan
Single Ventricle

Five open heart surgeries and a heart transplant at CHOP.

Brendan's Story

Aidan
Tetralogy of Fallot

Open heart surgery at 3 days of age and brain surgery at 5 weeks.

Aidan's Story

Brittany
Tetralogy of Fallot

Living with CHD as an adult and fulfilling her dream of being a mom.

Brittany's Story

Marla
Tetralogy of Fallot

Cared for TOF at CHOP since infancy. Still a patient, also a nurse.

Marla's Story

Matt
Tetralogy of Fallot

Traveled from New Mexico at 2 months for open heart surgery.

Matthew's Story

Chase
Transposition of the Great Arteries

A pulse oximetry screening detected a heart problem.

Brandon's Story

Chase
Transposition of the Great Arteries

Diagnosed with TGA and born in the Special Delivery Unit.

Chase's Story

Ian
Transposition of the Great Arteries

Born with TGA and taken to CHOP a few hours after his birth.

Ian's Story

Max
Transposition of the Great Arteries

Underwent balloon atrial septostomy soon after birth.

Max's Story

Srishti
Tricuspid Atresia

Has had three open-heart surgeries.

Srishti's Story

Nora
Ventricular Septal Defect

Diagnosed with a VSD at two days old.

Nora's Story

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For a second opinion, cardiac referral, or for more information.
267-426-9600

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