Each diagnosis is unique, and each family finds its own way of coping. But the experience can be made a little easier by knowing that you are not alone. Some of the families treated at the Cardiac Center share their stories here to provide support to other families facing similar diagnoses.
Rushed to CHOP for emergency open heart surgery at 3 months.
Has had two open-heart surgeries at Children's Hospital.
Had bypass surgery to treat his aortic stenosis at 2 months.
Diagnosed with an ASD after her pediatrician heard a heart murmur at four months.
Diagnosed with an ASD and a partial anomalous pulmonary venous return at 13 years of age.
Diagnosed with double inlet left ventricle before birth.
Treated for dilated cardiomyopathy at CHOP and received a heart transplant that saved her life.
Born in the Special Delivery Unit, for babies with birth defects diagnosed in the womb.
Diagnosed in utero when his mom was four months pregnant.
Diagnosed with HLHS when her Mom was five months pregnant.
Had her first open-heart surgery two days after birth.
Had his first open-heart surgery for HLHS when he was 4 days old.
Diagnosed with HLHS when her Mom was four months pregnant.
Born and treated at CHOP, these friends have much in common.
Received a heart transplant at 3 years of age.
Diagnosed with PDA when she was three months old.
Had open-heart surgery at two days of age to repair his pulmonary valve.
A successful lung transplant gave him a new life.
Five open heart surgeries and a heart transplant at CHOP.
Diagnosed with SVT and received expert treatment at CHOP.
Open heart surgery at 3 days of age and brain surgery at 5 weeks.
Diagnosed with TOF when his mom was five months pregnant.
Living with CHD as an adult and fulfilling her dream of being a mom.
Cared for TOF at CHOP since infancy. Still a patient, also a nurse.
Traveled from New Mexico at 2 months for open heart surgery.
A pulse oximetry screening detected a heart problem.
Diagnosed with TGA and born in the Special Delivery Unit.
Born with TGA and taken to CHOP a few hours after his birth.
Has been a patient of the Cardiac Center since her diagnosis with TGA as an infant.
Diagnosed with TGA a few hours after birth.
Underwent balloon atrial septostomy soon after birth.
Has had three open-heart surgeries.
Diagnosed with a VSD at two days old.
For a second opinion, cardiac referral, or for more information.
To schedule an outpatient appointment.