Cardiac Center

Patient Stories from the Cardiac Center

Each diagnosis is unique, and each family finds its own way of coping. But the experience can be made a little easier by knowing that you are not alone. Some of the families treated at the Cardiac Center share their stories here to provide support to other families facing similar diagnoses.

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Featured Patient Stories

Anomalous Left Coronary Artery

Rushed to CHOP for emergency open heart surgery at 3 months.

Quinn's Story


Aortic Stenosis

Has had two open heart surgeries at Children's Hospital.

Sarah's Story

Aortic and Pulmonary Stenosis

Had bypass surgery to treat his aortic stenosis at 2 months.

Matthew's Story

Atrial Septal Defects

A heart murmur led to the diagnosis of ASDs and open heart surgery at CHOP.

Matthew's Story

Atrial Septal Defect

Diagnosed with an ASD after her pediatrician heard a heart murmur at four months.

Morgan's Story

Atrial Septal Defect

Diagnosed with an ASD and a partial anomalous pulmonary venous return at 13 years of age.

Ryan’s Story

Double Inlet Left Ventricle

Diagnosed with double inlet left ventricle before birth.

Abby's Story


Treated for dilated cardiomyopathy at CHOP and received a heart transplant that saved her life.

Julia's Story

Coarctation of the Aorta and VSDs

Diagnosed with two heart defects and transported to CHOP for open heart surgery.

Zoey's Story

Heart Block

Born in the Special Delivery Unit, for babies with birth defects diagnosed in the womb.

Brie's Story

Hypoplastic Left Heart Syndrome

Diagnosed in utero when his mom was four months pregnant.

Tassos' Story

Hypoplastic Left Heart Syndrome

Diagnosed with HLHS when her Mom was five months pregnant.

Caila's Story

Hypoplastic Left Heart Syndrome

Had her first open heart surgery two days after birth.

Lily's Story

Hypoplastic Left Heart Syndrome

Had his first open heart surgery for HLHS when he was 4 days old.

Xavier's Story

Hypoplastic Left Heart Syndrome

Diagnosed with HLHS when her Mom was four months pregnant.

Maya's Story

Zoe Kellen
Hypoplastic Left Heart Syndrome

Born and treated at CHOP, these friends have much in common.

Zoe & Kellen's Story

Kawasaki Disease

Received a heart transplant at 3 years of age.

Kendall's Story

Patent Ductus Arteriosus

Diagnosed with PDA when she was three months old.

Katie's Story

Pulmonary Atresia

Had open heart surgery at two days of age to repair his pulmonary valve.

Justin's Story

Pulmonary Hypertension

A successful lung transplant gave him a new life.

Sankrit's Story

Single Ventricle

Five open heart surgeries and a heart transplant at CHOP.

Brendan's Story

Supraventricular Tachycardia

Diagnosed with SVT and received expert treatment at CHOP.

Oliver's Story

Tetralogy of Fallot

Open heart surgery at 3 days of age and brain surgery at 5 weeks.

Aidan's Story

Tetralogy of Fallot

Diagnosed with TOF when his mom was five months pregnant.

Ben's Story

Tetralogy of Fallot

Living with CHD as an adult and fulfilling her dream of being a mom.

Brittany's Story

Joshua and Michal
Tetralogy of Fallot

Had surgery for TOF during the first few weeks of life and received care at CHOP through adulthood.

Joshua's Story

Tetralogy of Fallot

Cared for TOF at CHOP since infancy. Still a patient, also a nurse.

Marla's Story

Tetralogy of Fallot

Traveled from New Mexico at 2 months for open heart surgery.

Matthew's Story

Transposition of the Great Arteries

A pulse oximetry screening detected a heart problem.

Brandon's Story

Transposition of the Great Arteries

Diagnosed with TGA and born in the Special Delivery Unit.

Chase's Story

Transposition of the Great Arteries

Born with TGA and taken to CHOP a few hours after his birth.

Ian's Story

Transposition of the Great Arteries

Has been a patient of the Cardiac Center since her diagnosis with TGA as an infant.

Joanna's Story

Transposition of the Great Arteries

Diagnosed with TGA a few hours after birth.

Melissa's Story

Transposition of the Great Arteries

Underwent balloon atrial septostomy soon after birth.

Max's Story

Tricuspid Atresia

Born with tricuspid atresia and several other heart conditions, underwent 4 surgeries at CHOP.

Jason's Story

Tricuspid Atresia

Has had three open heart surgeries
at CHOP.

Srishti's Story

Ventricular Septal Defect

Received the best cardiac care from CHOP-Penn team.

Bridget's Story

Ventricular Septal Defect

Diagnosed with a VSD as a 2-days-old, and referred to CHOP for open heart surgery.

Nora's Story


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