Congenital Hyperinsulinism Center
If you’re in America, this is the only place you can go. It’s the best chance you can give your child.
Lisa Robertson, whose son Richard was successfully cured — St. Louis, Mo.
Congenital hyperinsulinism (HI) is a disorder that causes hypoglycemia (low blood sugar) in infants and children, and is the most common cause of persistent hypoglycemia in infants and children. Congenital HI is a rare disease, affecting 1 in 25,000 to 50,000 babies. Since most children’s hospitals encounter only one or two cases a year, it is important to receive medical care from an experienced Center, such as the Congenital Hyperinsulinism Center at CHOP.
Why choose us
- Vast experience. The Congenital Hyperinsulinism Center was established in 1998, the first of its kind in the United States. We have treated more than 800 children with congenital HI, and performed nearly 400 pancreatectomies — making our Center the largest and most active HI Center.
- Unparalleled expertise. Our experience, combined with unique expertise in areas such as gene research, surgery and innovative treatment strategies, puts us at the forefront of clinical care for congenital hyperinsulinism. CHOP sees 80 percent of all babies born in the United States who are diagnosed with HI.
- Pioneering treatments. Our specialists are pioneers in the diagnosis and treatment of congenital HI, offering groundbreaking approaches that have set the standards for care worldwide.
- Great outcomes. About 50 percent of the patients who require a pancreatectomy for HI are diagnosed with focal hyperinsulinism. Our cure rate for focal HI is 95 percent.
- Multidisciplinary team. Our multidisciplinary team of experts includes pediatric endocrinologists, surgeons, radiologists, pathologists, anesthesiologists, nurses, social workers, researchers, speech and feeding therapists, and dieticians — all working together to provide specialized, patient-centered and seamless care for children with congenital HI and their families.
- Groundbreaking research. Since 2004, and under an FDA protocol, we have been performing the 18F-DOPA PET scan to identify focal HI lesions for the surgeons to remove. We have performed more than 230 18F-DOPA PET scans, by far the most of anyone in the world. This is only part of the innovative research being performed here at CHOP.
- Compassionate, family-centered care. Each and every patient and family we care for is unique, and we aim to tailor our care for each child. We encourage parents to actively participate in their child’s treatment and the decision-making process.
For more information, please contact us at 215-590-7682 or firstname.lastname@example.org.