A diagnosis of Hyperinsulinism brings with it unique challenges for each family it affects, and each family will cope in their own way. However, the experience can be made less overwhelming by hearing the stories of other families in similar situations. For that reason, some of the families in the Congenital Hyperinsulinism Center have shared their stories here, with the hope that ithey will ease the minds of other families facing similar diagnoses.
Read Mackenzie's story
Mackenzie's Focal Hyperinsulinism was diagnosed when she was 3 months old. She traveled to CHOP from Massachusetts for treatment and surgery.
Read Nathaniel's story
Nathaniel traveled from Georgia to The Children's Hospital of Philadelphia for surgery to treat his Focal KATP Hyperinsulinism.