A diagnosis of hyperinsulinism brings with it unique challenges for each family it affects, and each family will cope in their own way. However, the experience can be made less overwhelming by hearing the stories of other families in similar situations.
Her focal HI was confirmed with a PET scan and cured with surgery at CHOP.
Traveled 35 hours from Perth, Australia, for treatment of his focal HI.
Traveled to CHOP from Massachusetts for treatment and surgery of her focal HI.
Traveled from Georgia to CHOP for surgery to treat his focal KATP HI.
Was born with diffuse HI and had 98 percent of her pancreas removed in infancy.
Diagnosed at 2 weeks old with HI/HA syndrome; came to CHOP from California for treatment.
Had a pancreatectomy at 5 weeks of age to treat his diffuse hyperinsulinism.
Katelyn, her sister and her father have HI/HA. Learn how they're giving back by participating in research at CHOP.
Her HI is being medically managed, eliminating the need for major surgery.