Outcomes in Children with Hyperinsulinism Research Study
Although complications of hyperinsulinism during the first year of life are well documented, less is known about complications from hyperinsulinism later in life. Children with HI are at risk of developmental and behavioral problems, such as learning disabilities and attention deficit disorder. In addition, children who undergo surgery on their pancreas have higher rates of diabetes. Few studies have been done which have examined these long-term complications in children with HI.
What are the goals of this research study?
- To study outcomes in children with hyperinsulinism
- To determine how many of these children have diabetes and developmental or behavioral problems
Who can be a part of this research study?
Children and adults with hyperinsulinism who had surgery on their pancreas at the Children’s Hospital of Philadelphia between 1960 and 2008.
What will participants be asked to do?
- An interview with researchers about their blood sugars and their medical history
- Complete two developmental/behavioral questionnaires
- The interview can be done over the telephone. Questionnaires can be filled out at home and mailed back to CHOP
What are the benefits of taking part in this research study?
- Opportunity to do developmental/ behavioral screening
- Help researchers better understand the long-term risks for children with hyperinsulinism
- Better understanding of these risks will lead to better screening and treatment
I want to help! Who do I call?
Please call Dr. Katherine Lord at 267-425-2125 or email her at lordk@chop.edu.
CHOP IRB#: IRB 11-008419
Approval Date: 10/4/2011
Expiration Date: N/A
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