Cystic Fibrosis Center

Your Child's Healthcare Team

Attending Physician

Attending physicians are staff pediatricians certified in a pediatric sub-specialty such as Pulmonology or Gastroenterology. The attending physician is responsible for ensuring comprehensive patient care including diagnosis and medical management.

During CF office hours, the staff attending physician reviews the status of your child with members of the healthcare team, and together with you and the team, develops goals for future care.

During periods of hospitalization, the inpatient service attending physician will determine the medical management of your child. The attending rotates on a monthly basis. There are weekly meetings of the entire Pulmonary team to discuss and plan the inpatient care.

Advanced Practice Nurses

The Nurse Practitioner is a registered nurse with additional licensure certification who has also completed training at the Master's degree level. This nurse is qualified to obtain health histories, perform physical examinations, and is also involved in coordinating your child's care over time in various settings.

When patients at home have questions of a medical or nursing nature, the calls will frequently be answered by the nurse practitioner during daytime hours (9 a.m. to 4:30 p.m). Nurse practitioners along with the attending physician, are also responsible for coordinating the inpatient care during hospitalization.

Pulmonary Fellow

A fellow is a certified pediatrician who has completed medical school and residency training. A fellowship training program is three years of further specialized study and practice to become a specialist in Pediatric Pulmonary Medicine.

The Pulmonary fellow is assigned to provide primary CF care, with the attending physician, for patients during CF office hours for the three year period of fellowship training. Additionally, the fellows rotate monthly on the inpatient unit to provide care when the child is hospitalized on evenings, nights and weekends.

Outpatient medical care for emergencies on evenings, nights and weekends is provided by the outpatient fellow on-call in conjunction with the attending physician. The fellow responds to phone calls during this time and also provides direction to the emergency room staff if your child is seen there.

Resident Pediatrician

A resident has completed medical school and is in training to become a certified pediatrician. This requires three to four years of training. The pediatric resident provides daily medical care on an inpatient basis as directed by the Pulmonary Team.

Office Nurse

The office nurse is a registered or licensed practical nurse who coordinates the care activities during the outpatient visit. Obtaining and recording height and weight, administering injections, teaching proper use of inhalers, and making arrangements for special testing during clinic, are examples of responsibilities of the office nurse.

Primary Nurse

The primary nurse is the registered nurse responsible for coordinating and planning your child's care during the hospital stay. A team of nurses on the inpatient units works closely with the primary nurse while providing care for your child.

Physical Therapist

The physical therapist or PT has a Bachelor's or Master's degree in Physical Therapy. Training includes general science and physical therapy coursework; clinical affiliations or internships.

The PT's role in Cystic Fibrosis Center includes teaching chest physical therapy (CPT) and alternative breathing techniques to children and their families. These techniques are reviewed annually. Also, the PT assists in obtaining equipment related to CPT (e.g., wedges, mechanical percussors, vest).

During hospitalizations the PT evaluates exercise tolerance and develops a program suitable to the child's physical and medical needs as well as interest. Generally, a child will be seen three times a week for exercise including general stretching and warm-up, aerobic activity (chosen by the child) and cool down/breathing exercises.

Social Worker

The social worker has completed graduate school and received a Master's degree in Social Work (MSW). The social worker is experienced and knowledgeable in how chronic illness impacts the individual, family and other systems including school and peers. She is available to provide emotional support and assist in coping with the stress of a chronic illness. Additionally, the social worker has information regarding hospital and community resources to provide services to support family functioning.

Nutritionist

The nutritionist has a Master's degree in Nutrition and has accreditation through the national organization of Registered Dieticians. The role of the nutritionist is to help parents master skills which will assist the child in achieving optimal growth through good nutrition. This is accomplished through regular monitoring of height, weight, and food intake; assessment of enzyme replacement therapy, vitamin and other supplementation.

Information is provided about proper nutrition and ideas on how it can be modified to help children with CF eat a diet, which is appropriate for their age and physical needs. The child's food preferences, family's eating habits, cultural background and financial situation are taken into account in treatment recommendations.

Pulmonary Function Technologist

The pulmonary function technologist (PF tech) is certified or registered after successful completion of examinations in respiratory therapy and pulmonary function technology. The PF tech is proficient in performing all pulmonary function studies.

The key roles of the PF tech are to gain the cooperation of the child by explaining the proper way to perform maneuvers, to coach the child during each maneuver to maximize the best effort, and to select and report the most accurate testing trial to the medical team. PF techs also teach and review proper inhaler and spacer technique during testing.

Child Life Specialist

The child life specialist has an undergraduate or masters degree in child life (or related field) and is specially trained in child development and the effects of illness, injury, disability, health care, and hospitalization on the family.

During an inpatient stay, the child life programs offer opportunities to play, learn, and interact with others in an emotionally and physically safe environment. These activities help to reduce stress, increase coping skills, and enhance developmental growth through learning and mastery of the health care experience. In addition, the child life specialists prepare patients and families for procedures by reviewing and teaching coping and relaxation techniques.

School Teacher

Certified teachers work together with your child's school to provide instruction and educational support during hospitalizations. The Hospital School Program is designed to help children keep up with schoolwork and make the transition from hospital back to school as smooth as possible.

Clinical Pharmacologist

The clinical pharmacologist has a doctor of pharmacy degree. The pharmacologist reviews your child's medication profile (both outpatient and inpatient) to check for correct dosages and to identify potential drug allergies or drug interactions. The pharmacologist also reviews antibiotic blood levels and makes dosing recommendations based upon the levels. The pharmacologist is available during office hours to answer questions about medications from the patients, parents, nurses and physicians. In addition, the pharmacologist assists in clinical drug trials conducted at the CF Center.

BACK TO TOP

  • Print
  • Share

Contact Us