Cystic Fibrosis Center

Cystic Fibrosis Parent Advisory Board

CHOP's CF Parent Advisory Board is a group of parents who work with Cystic Fibrosis Center staff and Hospital leadership to enhance medical care and quality of life for children with cystic fibrosis and their families.

Board members:

Guidelines for Cystic Fibrosis Parent Advisory Board members

The Parent Advisory Board meets at least four times each year and parents are encouraged to serve two years on the board.

Cystic Fibrosis Parent Advisory Board activities

Recent efforts include:

Future projects

Future planned activities include:

 

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