Matthew and Shannon sing the praises of the care their 1-year-old son, Oliver, received at Children’s Hospital, except for one brief moment. The relief of a quick diagnosis in the Emergency Oliver with his mother, ShannonDepartment turned into momentary panic when the doctor began an appropriate, effective — yet to Matthew totally bizarre — treatment to slow Oliver’s racing heart.
The doctor came in with a bag of ice and pressed it against Oliver’s face. "I was about ready to grab the doctor to make him stop," Matthew recalls. "Oliver was screaming, ‘No, no, no.’ I was going crazy."
The doctor had skipped an important step in the KIDS CARE model (see below) of family-centered care: The E, which stands for "Explain what you are going to do before you do it."
"If someone had just taken a minute to prepare us, it would have been OK," Matthew says. "But no one did."
Clinicians did a much better job of hitting all the points of KIDS CARE throughout the rest of Oliver’s three-week stay, during which cardiologists were able to control his supraventricular tachycardia, or SVT, a cardiac condition characterized by a racing heart beat caused by electrical misfiring in the heart.
Here’s what you can expect your child’s care team to do while your child is hospitalized at CHOP:
It wasn’t until Oliver was back home being a normal toddler, thanks to five doses of heart medication a day, and Matthew had joined the Family Advisory Council, that he learned about the KIDS CARE model. In 2011, nursing leadership revived the acronym, originally created in 2002, and updated a couple of the letters’ meanings to reinforce patient safety while still maintaining its purpose of building trusting, respectful relationships between families and care providers.
"The actions described in KIDS CARE are what our nurses already do, but KIDS CARE helps them deliberately communicate so everyone is on the same page," says Joanna Horst, MSN, RNC, NEA-BC, nurse manager in the Garbose Family Special Delivery Unit.
"The deliberate nature of communicating what we are doing allows parents to be involved and informed, and to intervene or ask questions, if needed," says Ana Figueroa Altmann, MSN, RN, nurse manager for the Medical Hospitalist Team unit. "A parent may not know all of the safety measures we take to ensure the quality and safe care of their child. So, when a nurse states, ‘I’m going to check Ben’s ID band now to make sure it matches this ordered medicine,’ it educates parents."
To make it a true partnership with patients and families, KIDS CARE information is now part of the Welcome Packet and nurses review it with family members within 48 hours of admission.
"We definitely felt like we were a part of Oliver’s care team," says Matthew. "I remember every time there was a nursing shift change, the out-going nurse would introduce us to the next shift nurse. I could see them checking Oliver’s ID band, even in the middle of the night, before they gave him his meds."
He also remembers one night, when overnight nurse Jackie Brown, RN, BSN, after taking Oliver’s vital signs, stayed and sang softly to him until he fell back to sleep. "You see all the accolades about CHOP being the No. 1 Children’s Hospital," Matthew says, "but the tenderness our nurse showed that night is the reason CHOP is No. 1 for us."