Family-Centered Care

Parent to Parent

P2P USA provides support for families of children who have special needs. Visit P2P USA to find a program near you!

Web and Print Resources


The Children's Hospital of Philadelphia partners with national organizations that support our mission in patient- and family-centered care. Use the links below to learn more. Note: The following external links will open in a new browser window.

National Organizations

The Institute for Patient- and Family-Centered Care
Provides leadership to advance the understanding and practice of patient- and family-centered care in hospitals and other health care settings.

Parent to Parent USA
Parent to Parent provides emotional and informational support to families of children who have special needs.

NRC + Picker
NRC+Picker is dedicated to measuring and improving the most important aspects of the patient experience.

National Initiative for Children’s Healthcare Quality
The National Initiative for Children's Healthcare Quality (NICHQ) is an action-oriented organization dedicated solely to improving the quality of health care provided to children.

The Institute for Healthcare Improvement
The Institute for Healthcare Improvement (IHI) is a non-for-profit organization leading the improvement of health care throughout the world.

National Association of Children’s Hospitals and Related Institutions
NACHRI is a voice for health systems devoted to the well-being of America's 70 million children and their families and we work to ensure children's access to health care and the continuing ability of children's hospitals to provide services needed by children.



Blough, J., Brown, P. et al. The Parent Leadership Program Training Manual. Michigan: The ARC, 1996.

Hanson, J.L., Johnson, B.H., Jeppson, E.S., Thomas, J. & Hall, J.H. Hospitals Moving Forward with Family-Centered Care. Bethesda, MD: Institute for Family-Centered Care, 1994.

Hostler, S. Family-centered Care: Implementation in Tertiary Care Settings. Charlottesville, VA: University of Virginia, Children's Medical Center, Kluge Children's Rehabilitation Center, 1995.

Jeppson, E.S. & Thomas, J. Essential Allies: Families as Advisors. Bethesda, MD: Institute for Family-Centered Care, 1995.

Jeppson, E.S. & Thomas, J. Families as Advisors: A Training Guide for Collaboration. Bethesda, MD: Institute for Family-Centered Care, 1997.

Kritek, P.B. Negotiating at an Uneven Table: A Practical Approach to Working With Difference and Diversity. San Francisco: Jossey-Bass, 1994.

Matasak, L. Finding Your Voice: Learning to Lead ... Anywhere You Want to Make a Difference. San Francisco, Jossey-Bass, 1996.

Taner-Leff, P. &. Walizer, E.H. Building the Healing Partnership. Massachusetts: Brookline Books, 1992.

Thomas, J. & Jeppson, E.S. Words of Advice: A Guidebook for Families Serving in Advisory Roles. Bethesda, MD: Institute for Family-Centered Care, 1997.


Hanson, J.L., Randall, V.F. and Colston, S.S. Parent Advisors: Enhancing services for young children with special needs. Infants and Young Children, 12(1): 17-25, 1999.

Johnson, B.H. Family-centered Care: Creating partnerships in health. Group Practice Journal, 48(9): 18-21, 1999.

Nellis, M., Navagh, S., Shaw, R., and Weinberger, H.L. How to develop a parent advisory council — and why. Contemporary Pediatrics, 15(10): 179-80, 182, 184, 1998.

Patterson, J. and Hovey D. Family-centered care for children with special health care needs: Rhetoric or reality? Families, Systems and Health, 18: 237-251, 2000.

Shaw, G. Family-centered care: Today pediatrics, tomorrow the world. Reporter, 8(11): 8, 1999. (Association of American Medical Colleges).

Want to bring the family into patient care? Look to pediatrics for a model: Your results should be improved satisfaction, lower costs, better outcomes. Patient-Focused Care & Satisfaction, 7(8): 85-6, 88-90, 1999.

Cooley, W.C. and McAllister, J.W. (1999). Putting family-centered care into practice - A model response to the adaptive practice model. Developmental and Behavioral Pediatrics, 20(2): 120-122.

Hunter, R.W. (1994). Parents as policy-makers: A handbook for effective participation. Portland, OR: Portland State University, Research and Training Center on Family Support and Children's Mental Health.

Hansten, R. Relationships and results: Solid patient relationships can improve clinical outcomes. Healthcare Executive, 20(4):34-35, July/Aug. 2005.

Kamienski, M. Emergency: Family-centered care in the ED. The American Journal of Nursing, 104(1):59-62, Jan. 2004.

Hibbard, J. Moving toward a more patient-centered health care delivery system. Health Affairs:133-139, Suppl., 2004.

Scalise, D. The patient experience. Hospitals & Healthcare Networks, 77(12):41-8, 2, Dec. 2003.

Spath, P. L. Can you hear me now? Providers must give patients a voice in efforts to reduce medical errors. Hospitals & Healthcare Networks, 77(12):36-40, 49, 2, Dec. 2003.

Clark, P..A., Drain, M., and Malone, M. P. Addressing patients' emotional and spiritual needs. Joint Commission Journal on Quality and Safety, 29(12):659-70, Dec. 2003.

Paddison, N. Putting patients first. Marketing Health Services, 23(3):50-1, Fall 2003.

Data trends. Measuring the cost benefits of family-centered care. Healthcare Financial Management, 57(9):118, Sep. 2003.

Dube L. What's missing from patient-centered care? Marketing Health Services, 23(1):30-5, Spring 2003.

MacStravic, S. Cultivating patient relationships. Marketing Health Services, 23(1):24-9, Spring 2003.

Making it personal improves patient care. Healthcare Benchmarks Quality Improvement, 10(4):40-2, Apr. 2003.

Rees, T. Hosptial's website structured for the patient's perspective. North Memorial Medical Center site features 'care centers'. Profiles in Healthcare Marketing, 19(2):36-41, 3, Mar./Apr. 2003.

Hibbard, J. H. Engaging health care consumers to improve the quality of care. Medical Care, 41(1 Suppl):I61-70, Jan. 2003.

The Patient Care Partnership: Understanding Expectations, Rights and Responsibilities: What to Expect During Your Hospital Stay. Chicago: American Hospital Association, 2003. (WX 158.5 P2985 2003).

Frampton, S., Gilpin, L., and Charmel, P., editors. Putting Patients First: Designing and Practicing Patient-Centered Care. San Francisco: Jossey-Bass, 2003. (W 84.5 P993 2003).

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