Pulmonary Hypoplasia Program
About pulmonary hypoplasia
Children who have congenital diaphragmatic hernias, lung lesions or giant omphaloceles may also develop pulmonary hypoplasia, a condition which limits full lung development. Children with pulmonary hypoplasia may have problems with:
- Breathing
- Feeding
- Cardiac function
- Meeting developmental milestones
How the Pulmonary Hypoplasia Program can help
The Pulmonary Hypoplasia Program at The Children's Hospital of Philadelphia makes it easier for your child to receive complete and current care for this disorder. Our team of pulmonary hypoplasia specialists evaluates your child in one location during a single visit and completes any testing that needs to be done. You leave with a clear picture of your child's condition and a plan for ongoing support.
Services
The services we offer during your visit will be tailored to your child's specific needs and may include:
Neonatal Follow up
A developmental pediatrician, pediatric nurse practitioner, developmental psychologist and nutritionist will take an interim medical history, and conduct a physical and neuromuscular evaluation.
Pulmonary Medicine
A pediatric pulmonologist will complete a full history and physical assessment, and work with you to improve your child's pulmonary health. Pulmonary function studies are completed as needed.
Cardiology
A pediatric cardiologist will complete a full cardiac history and assessment. When testing such as echocardiograms and EKGs are needed, they can usually be completed during your child's visit.
General Surgery
A pediatric surgeon will follow up your child's surgery by completing a history and physical examination. This helps the surgeon to detect and treat any surgical issues that may arise as your child grows and develops.
Nutrition
A dietician will work with the team to meet your child's nutritional needs.
Audiology
An audiologist will perform a formal hearing test on your child every six months until school age to monitor for late onset hearing loss.
Social Services
A social worker can help you with any financial or school issues by locating community resources and support services for your child
Other services
Based on your child's needs, the team may recommend speech, orthopaedic, gastroenterology or ophthalmology evaluations. They also may recommend additional testing, including a video swallow, milk scan and upper GI study.
Appointments
Appointment schedules are based on your child's needs but typically occur at 1, 3 and 6 months of age and yearly thereafter. Appointments with specific specialists and testing are arranged on an individual basis. To make an appointment or to discuss any questions you may have, please call us at 215-590-2733.
Location
The Pulmonary Hypoplasia Program is located on the 5th floor of the Wood Center, in the General Surgery Clinic.
Get door-to-door directions from your home to the Wood Center »
Parking at the Wood Center
Proceed south on 34th Street, which becomes Civic Center Boulevard at the bend, to the third traffic light past Children's Hospital. Make a right at the light and proceed straight 100 ft. A ramp entrance to the underground garage is on your right, underneath the Wood Center. The garage is open 7 a.m. to midnight and accommodates vehicles up to 6' 7'' in height. Elevators and stairs connect the garage to the Wood Center.
Resources for Families
Congenital diaphragmatic hernia support groups
Congenital diaphragmatic hernia publications
Contact Us
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- (1-800-IN-UTERO)
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