Stories of patients with fetal diagnoses | The Children's Hospital of Philadelphia

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Patient Stories

Each fetal diagnosis is unique, and each family finds its own way of coping with it. But the experience can be made a little easier by knowing that you are not alone. Some of the families treated at the Center for Fetal Diagnosis and Treatment share their stories here to provide support to other families facing similar diagnoses.

Bronchopulmonary Sequestration (BPS)

Congenital High Airway Obstruction Syndrome (CHAOS)

Congenital Cystic Adenomatoid Malformation (CCAM)

Congenital Diaphragmatic Hernia (CDH)

Gastroschisis

Lower Urinary Tract Obstruction (LUTO)

Mediastinal Chest Mass

Omphalocele

Spina Bifida

Twin Reversed Arterial Perfusion Syndrome (TRAP)

Twin-twin Transfusion Syndrome (TTTS)

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More Patient Stories

Read more patient stories in our CFDT in the News section»

 

About these diagnoses

Read more about these diagnoses, including  treatment options:

 

After Fetal Surgery

As new families investigate fetal surgery for spina bifida, some prior CHOP patients talk about how their children are progressing after receiving this groundbreaking surgery. See our Spina Bifida Snapshots.