Stories of patients with fetal diagnoses | The Children's Hospital of Philadelphia

Center for Fetal Diagnosis and Treatment

Patient Stories

Each fetal diagnosis is unique, and each family finds its own way of coping with it. But the experience can be made a little easier by knowing that you are not alone. Some of the families treated at the Center for Fetal Diagnosis and Treatment share their stories here to provide support to other families facing similar diagnoses.

Bronchopulmonary Sequestration (BPS)

Congenital Cystic Adenomatoid Malformation (CCAM)

Congenital Diaphragmatic Hernia (CDH)

Congenital High Airway Obstruction Syndrome (CHAOS)

Gastroschisis

Giant Neck Mass

Lower Urinary Tract Obstruction (LUTO)

Mediastinal Chest Mass

Omphalocele

Sacrococcygeal Teratoma (SCT)

Spina Bifida

Twin Reversed Arterial Perfusion Syndrome (TRAP)

Twin-twin Transfusion Syndrome (TTTS)

 

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More Patient Stories

Read more patient stories in our CFDT in the News section »

Annual Report 2013

Doctors found a tumor on Tucker’s heart when his mother, Katie, was 20 weeks pregnant. Surgeons at CHOP performed open fetal surgery to remove the tumor, and Tucker, born 14 weeks later, became the first baby to survive the groundbreaking procedure. Learn more in CHOP’s 2013 Annual Report.

After Fetal Surgery

As new families investigate fetal surgery for spina bifida, some prior CHOP patients talk about how their children are progressing after receiving this groundbreaking surgery. See our Spina Bifida Snapshots.