Friedreich's Ataxia Program

Online FA Resources for Families

Friedreich's Ataxia Research Alliance (FARA)
This site is designed for patient families, scientific investigators, and healthcare professionals interested in Friedreich's Ataxia. New research findings and the latest in clinical trials are posted. Patients can register as interested candidates for research and be notified of new studies as they open for enrollment.

National Institute of Neurological Disorders and Stroke Friedreich's Ataxia Fact Sheet
The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders.

Muscular Dystrophy Association
A national voluntary health agency dedicated to conquering more than 40 neuromuscular diseases that affect a million Americans of all ages.

Muscular Dystrophy Association Publication on FA
The Muscular Dystrophy Association's fact sheet on Friedreich's Ataxia.

Friedreich’s Ataxia Parent Group (FAPG)
This online forum for parents of individuals with FA (or an undiagnosed ataxia syndrome) provides families with the means to share their experiences and knowledge living with the condition. If includes FA-related news and opportunities for families to network.

  • Print
  • Share

Contact Us

Save the Date:
Oct. 14, 2013

Join us for the Sixth Annual Friedreich’s Ataxia Symposium at the Crowne Plaza Valley Forge, King of Prussia, PA. Learn more »