Friedreich's Ataxia Symposium
Worldwide, Friedreich’s Ataxia (FA) affects about 1 in 50,000 people, making it the most common in a group of related disorders called hereditary ataxias. While there is currently no cure for FA, efforts continue to be made towards research that will one day halt or even reverse disease progression.
Every year, the Friedreich’s Ataxia Program at The Children's Hospital of Philadelphia holds a one-day symposium to provide patients and families with up-to-date clinical information, therapeutic approaches and current research being conducted in the field of Friedreich’s Ataxia.
Save the Date: Oct. 14, 2013
The Sixth Annual Friedreich’s Ataxia Symposium is scheduled for Monday, Oct. 14, 2013, at the Crowne Plaza Valley Forge, King of Prussia, PA.
This year's event will include:
- Clinical updates on cardiology, neurology and physical therapy
- Updates on current research and clinical trails
- Pre-symptomatic testing
- Panel discussion on driving
Families are also invited to attend welcome events on Sunday, Oct. 13. The symposium is sponsored by the Friedreich's Ataxia Program at CHOP.
For register, contact CHOP's Continuing Medical Education Department at 215-590-5263.
Please download our event flyer to learn more.
Fifth Annual Friedreich’s Ataxia Symposium
The Fifth Annual Friedreich’s Ataxia Symposium was held on Oct. 8, 2012 and featured:
- Clinical updates, including cardiology, neurology, physical therapy, and pregnancy in patients with FA
- Updates on current research and clinical trials, including gene therapy, HDAC inhibitors
- Panel discussion on accessible travel
VIDEO APPEARS HERE
Archived symposia
Please visit our "Symposium Archive" page for topics and presentations from previous Friedreich's Ataxia symposia.
Date: April 2013
Contact Us
- 267-426-7538
- Contact Us Online
- Request an Appointment