Friedreich's Ataxia Program

Friedreich's Ataxia Symposium

Worldwide, Friedreich’s Ataxia (FA) affects about 1 in 50,000 people, making it the most common in a group of related disorders called hereditary ataxias. While there is currently no cure for FA, efforts continue to be made towards research that will one day halt or even reverse disease progression.

Every year, the Friedreich’s Ataxia Program at The Children's Hospital of Philadelphia holds a one-day symposium to provide patients and families with up-to-date clinical information, therapeutic approaches and current research being conducted in the field of Friedreich’s Ataxia.

Fifth Annual Friedreich’s Ataxia Symposium

The Fifth Annual Friedreich’s Ataxia Symposium was held on Oct. 8, 2012 and featured:

Clinical updates, including cardiology, neurology, physical therapy, and pregnancy in patients with FA
Updates on current research and clinical trials, including gene therapy, HDAC inhibitors
Panel discussion on accessible travel

VIDEO APPEARS HERE

Archived symposia

Please visit our "Symposium Archive" page for topics and presentations from previous Friedreich's Ataxia symposia.

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