Friedreich's Ataxia Program

Children and young adults with Friedreich's ataxia (FA) will find dedicated, expert care at Children’s Hospital of Philadelphia’s Friedreich's Ataxia Program. Our program is part of the Friedreich’s Ataxia Center of Excellence, a first-of-its-kind collaboration of leading FA experts committed to promoting FA research and clinical care. From initial diagnosis and testing through long-term disease management, we provide comprehensive care for children and adults from all over the world with this rare, progressive neurogenetic condition. Our aim is to provide you or your child with the best clinical care available and advance research to improve the lives of all individuals with FA.

FDA Approves First Drug for Friedreich’s Ataxia

Why Choose Us?

At Children’s Hospital of Philadelphia’s Friedreich’s Ataxia Program, children have access to top-notch clinical care and cutting-edge research opportunities in one place. As part of the Friedreich’s Ataxia Center of Excellence and the largest FA clinical program in the world, we are uniquely equipped to provide the specialized care patients with this rare, complex disease need. Learn more about our commitment to helping patients with FA and what it means to be a Center of Excellence.

Conditions We Treat

Our Team

Our team of FA experts provides comprehensive care, from initial diagnosis and testing through long-term disease management.


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FARA check presentation

$3.25 Million Gift Creates Friedreich’s Ataxia Center of Excellence

Donations from FARA and the Hamilton and Finneran Families helps launch Penn Medicine/CHOP Center to improve research and care for Friedreich's Ataxia.

Amazing Grace

Amazing Grace

The new Friedreich’s Ataxia Center of Excellence gives hope and education to Grace Haupt and patients just like her.

2016 Friedreich's Ataxia Symposium

2016 Friedreich’s Ataxia Symposium

Watch a recording of the topics presented at the ninth annual Friedreich’s Ataxia Symposium in 2016.