Overview
The Friedreich's Ataxia (FA) Program at The Children's Hospital of Philadelphia is one of the largest programs of its kind in the United States. We care for approximately 120 patients a year with FA, who come here from all over the world. We follow both children and adults with FA, and address issues for patients with classical FA as well as adults onset FA. Learn about Friedreich's Ataxia»
Specialized care and support
For patients
Our team of FA experts provides expert care, from initial testing and diagnosis through long-term disease management. Although there currently is no cure for FA, our innovative approaches control symptoms and improve quality of life. Patients will receive the latest treatments, as well as intensive support from our team of physicians, genetic counselors, social workers, nurses, educators and clinical researchers.
For families
Because FA places unique emotional demands on patients and families, you will receive the support and counseling you need to adapt to life with FA. We invite you to become part of our Program's support network by attending meetings and events where you can interact with others experiencing the same challenges.
Research
Our researchers are actively involved in basic and clinical research studies. Our goal is to gain a better understanding of FA's causes and processes, and to find better treatments. Patients will have the opportunity to participate in these clinical studies and to benefit from any research advances that are applied to patient care. Learn more about our research projects»
Comprehensive clinical services
Our clinical services range from evaluation and diagnosis to treatment, including emphases on:
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Promoting normal growth and development
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Slowing the progression of FA
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Prevention and treatment of complications
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Helping the family integrate even the most complex care regiments into their daily life
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Integrated, multidisciplinary care for children with FA and their families
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Educational programs for patients, families and community care providers
Additional consultations
The Friedreich's Ataxia Program team has easy access to the many subspecialties at The Children's Hospital of Philadelphia. We will refer your child to them as needed, based upon our evaluation findings.
Appointments
To make an appointment, please call 267-426-7538. We are located at Children's Hospital's main campus in Philadelphia as well as at our satellite location in King of Prussia.
Directions
For door-to-door directions to The Children's Hospital of Philadelphia, visit our Directions and Parking page.
