Hematology

Mid-Atlantic Region III Core Center for Federally Funded Hemophilia Treatment Centers (HTCs)

A national network of HTCs

A national network of over 130 Hemophilia Treatment Centers (HTCs) is supported and funded by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA). HTCs are specialized healthcare centers staffed by a team of doctors, nurses, social workers, physical therapists and other health professionals with expertise in hemophilia treatment.

HTCs nationwide are divided into eight regions, each of which is operated by a Core Center. The Core Centers also receive funding from the Centers for Disease Control and Prevention (CDC), administered by the American Hemostasis and Thrombosis Network (ATHN). This funding is distributed among the 130 HTCs to participate in surveillance to prevent complications of bleeding and clotting disorders.

About Mid-Atlantic Region III

The Mid-Atlantic Region III consists of 14 HTCs in Delaware, Maryland, Pennsylvania, Virginia, West Virginia and the District of Columbia. The Regional Core Center has been located at The Children’s Hospital of Philadelphia since 2009. The Core Center works to ensure that individuals with hemophilia and other bleeding disorders and their families have access to appropriate hematologic, genetic and other medical expertise and information in the context of a medical home model that provides family-centered, culturally sensitive, high quality and comprehensive care.

As a Core Center, CHOP oversees the services provided by the Mid-Atlantic Region III HTCs, and collaborates with the MCHB and CDC to improve treatment and support for people with hemophilia and other inherited bleeding and clotting disorders. Mid-Atlantic Region III HTCs are a valuable resource at the local, regional, and national level for information about bleeding disorders.

Contact Mid-Atlantic Region III Core Center

Regina Butler, RN, the Regional Director (RD), was appointed Director in 2009. Danielle Deery joined the Core Center in 2011 as the Regional Coordinator (RC). To contact the Core Center for Mid-Atlantic Region III, please call or email:

Danielle Deery, Regional Coordinator: 267-426-5586
Regina Butler, Regional Director: 215-590-2198

Hemophilia Treatment Centers in Mid-Atlantic Region III

Mid-Atlantic Region III consists of HTCs in Delaware, Maryland, Pennsylvania, Virginia, West Virginia and the District of Columbia, which treat children and adults. The patient populations at these centers range in size from 100 to more than 400 patients.

Charleston Area Medical Center (CAMC)

PI – Steven Jubelirer, MD
Contact: Donna Arden, RN
c/o Cancer Care Center-Chemotherapy
3200 MacCorkle Avenue, SE
Charleston, WV 25304-1227
Phone: (304) 388-889

Cardeza Foundation Hemophilia Center (CFHC)

PI – Douglass Drelich, MD
Contact: Kay Miller, RN
1015 Chestnut St., Suite 1321
Philadelphia, PA 19107-4310
(215) 955-8435

Children’s Hospital of Philadelphia (CHOP)

PI – Leslie Raffini, MD 
Contact:  Mary Louise Mattia
3501 Civic Center Boulevard
Division of Hematology, CTRB-11th Floor
Philadelphia, PA 19104
(215) 590-4493

Children’s Hospital of the King’s Daughters (CHKD)

PI – Anthony Villella, MD
Contact:  Kimberly Stewart, RN
Phone Number: 757-668-7613
Bleeding Disorders Center of Hampton Roads
Division of Hematology/Oncology
601 Children’s Lane
Norfolk, VA 23507-1910
(757) 668-7243

Children’s National Medical Center

PI – Michael Guerrera, MD
Contact:  Chris Guelcher, MS, PNP-BC
111 Michigan Avenue, NW
Washington, DC 20010-2970
(202) 476-3622

Georgetown University Medical Center (GTU)

PI – Craig Kessler, MD
Contact:  Lisa Jacobs, MBA
Phone Number: 202-687-4861
Lombardi Cancer Center, Division of Hem/Onc
3800 Reservoir Road, NW
Washington, DC 20007-2113
(202) 687-0117

Hemophilia Center of Central PA (HCCP)

PI – Elaine Eyster, MD
Contact:  Colleen Farrell, RN
Milton S. Hershey Medical Center
500 Univ. Dr., P.O. Box 850, Mail Code H046
Hershey, PA 17033-0850
(717) 531-7468

Hemophilia Center of Western PA (HCWP)

PI – Margaret V. Ragni, MD
Contact:  Diane Standish, LSW
3636 Boulevard of the Allies
Pittsburgh, PA 15213-4306
(412) 209-7280

Johns Hopkins Medical Center (JHU)

PI – James F. Casella, MD
Contact:  Trish Underland, RN
1125 Ross, 720 Rutland Avenue
Baltimore, MD 21205-2109
(410) 614-0834

Lehigh Valley Hospital (LVH)

PI – Lloyd Barron II, MD
Contact:  Arnette Hams, RN
2524 Schoenersville Road, Third Floor
Bethlehem, PA 18107
Phone: (484) 884-2080

Penn Comprehensive Hemophilia Program (PCHP)

PI – Patrick Fogarty, MD
Contact:  Susan Cutter, LCSW, MPA
Penn Comprehensive Hemophilia Program
Hospital of the University of Pennsylvania
3400 Spruce Street, 3rd Floor-Dulles Bldg.
Philadelphia, PA 19104-4221
(215) 615-6555

University of Virginia (UVA)

PI – Kimberly Dunsmore, MD
Contact:  Margy Sennett, RN, BS, CPNP, CPON
PO Box 800386, Pediatric Hematology
University of Virginia Medical Center
Charlottesville, VA 22908-0386
(434) 924-8499

Virginia Commonwealth University (VCU)

PI – John C. Barrett, MD
Contact:  Jan Kuhn, RN
VCU/VCUHS Station
West Hospital
1200 East Broad Street
4th Floor, Room 442, Southwing
Richmond, VA 23298-0461
(804) 827-3306

West Virginia University (WVU)

PI-John Rogers, MD
Contact: Sylvia Webber, RN
WVUHealthcare
Mary Babb Randolph Cancer Center Clinic
One Medical Center Drive
PO Box 8110
Morgantown, WV 26506-8110
Operated by WVU Hospitals
304-598-4500

About other regions

The Mid-Atlantic Region III is one of eight HRSA regions and one of twelve CDC regions. We collaborate with the other regions on each grant by holding monthly conference calls and bi-annual in-person meetings. Each region represents the HTCs in their geographic area. The following are regions with a web presence.

htc-national-regions-map

 

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