Hemostasis and Thrombosis Center

Hemostasis and Thrombosis Center (HTC)

The Hemostasis and Thrombosis Center (HTC) at The Children’s Hospital of Philadelphia is devoted to providing comprehensive, family-centered care to children and adolescents with hemophilia, other inherited bleeding disorders and those with blood clots (thrombosis) or at increased risk for clots (thrombophilia) in a multi-disciplinary team approach.

The HTC at CHOP is a part of the national network of federally funded HTCs in the U.S. and serves as the core center for the 14 HTCs in the Mid Atlantic Region. This is a highly effective collaborative network for comprehensive care for patients with inherited bleeding and clotting disorders. In this network, we have successfully collaborated in the evaluation and implementation of expert services and serve as a resource at the local, regional and national level for information about bleeding and clotting disorders.

The team works to ensure that patients with inherited bleeding or clotting disorders and their families have access to appropriate hematologic, genetic, and other medical expertise in the medical home model that provides family-centered, culturally competent and quality comprehensive care. Beginning at the time of diagnosis, the team works with patients and families to provide appropriate education, counseling, testing, and to develop a plan of care that meets the individual needs of each patient.

Communication between the HTC team and the patients and families is a critical part of the delivery of safe and effective care. We encourage questions, feedback and are available 24 hours a day, 7 days a week to assist with acute issues that may arise for our patients.
The HTC team consists of Leslie Raffini, MD, Medical Director, Char Witmer, MD, Michele Lambert, MD, and Spencer Sullivan, MD, pediatric hematologists; Regina Butler, Nurse Coordinator and Director for the Mid Atlantic Region; Melina Martin and Mike Schiller, social workers; Marilyn Blumenstein, Patty Rettig and Mary Lou MacDermott, Nurse Practitioners; Sue Gallagher, Miriam O’Neill, Program Nurses; Mary Louise Mattia, Program Coordinator, Ukeme Barnes, Research Nurse; Danielle Deery, Mid Atlantic Regional Coordinator; Dawn Banks, Administrative Assistant; and Stephanie Shealy, Morgan Cronin and Sarah Iosifescu, Resource Coordinators.

Our programs

While HTC is one center with a large team devoted to the care of all bleeding and clotting patients, smaller sub-programs have been established to facilitate care of children with specific bleeding or clotting disorders.

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Winter 2014
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