The following Children's Hospital resources are designed for patients with sickle cell disease and their families:
The Sickle Cell Center has developed comprehensive information on sickle cell disease and how it can affect the school life of children. The information is available to teachers, school nurses and physical education classes. Typically, families request that this information be sent to their child's teacher or teachers and passed along to school nurses. Families may request that the Center's nurse-specialists meet with school personnel to provide information about measures that can be taken to avoid or address problems that students with sickle cell disease may face. To learn more about the program and/or to request specially developed literature for school staff, contact Michele Haynes at 267-426-9723.
Our annual overnight camp held each August enables sickle cell patients ages 7 to 14 to experience the fun of summer camp in a caring environment with specially trained staff that is aware of their needs. Transportation, food, medical equipment, and other expenses are funded solely through contributions. The families of the campers pay nothing. The camp is staffed by physicians, nurses, social workers, psychologists and community volunteers. For more information, call Michele Haynes at 267-426-9723.
The Teen Group was developed to enhance adolescents' knowledge about sickle cell disease, address adolescent social issues, and develop a spirit of community service. Teens participate in service activities aimed at educating the public about sickle cell disease and work directly with those who have the disease. Annually in September, our teenagers volunteer in the educational activities organized by the Delaware Valley Chapter of the Sickle Cell Disease Association of America for National Sickle Cell Disease Awareness Month. The teens also take part in community health fairs to promote education on health issues in the African, African-American, and Latino communities. For more information, contact Trudy Tchume-Johnson at 267-426-5037.