Children and teens with chronic illnesses must deal with the social and emotional impact of their illnesses as well as the physical symptoms. Kids and teens with IBD suffer even more stress because they have a disease that's rarely discussed openly among the public — a disease surrounded by misunderstanding, shame and denial. IBD sufferers bear the consequences in silence and they are often unaware that support is available.
The following list provides information and personal support resources that can help children, teens and families cope with life with IBD. We hope you will find it helpful.
The IBD Family Research Council (FRC) is a volunteer organization of families whose children have been cared for at the Center for Pediatric Inflammatory Bowel Disease at The Children's Hospital of Philadelphia.
Organized in 2006, we are dedicated to making a difference in the lives of children suffering with IBD and are committed to raising the research dollars that CHOP needs to continue finding better treatments and get us to a cure.
We meet to learn about the latest cutting-edge research from Robert N. Baldassano, MD, and his team of physicians and researchers. As IBD families, we join together annually at our "Walk for Hope". To learn more, please email us.
Led by CHOP gastroenterologists, psychologists, and staff from the IBD Center at The Children’s Hospital of Philadelphia, we welcome children, adolescents and families to join us to discuss your concerns and the emotional challenges of living with Crohn's disease and ulcerative colitis.
For more information, please call us at 267-426-6822 or by email.
The Connelly Resource Center for Families is a quiet place to take a break; surf the Internet; attend a coffee hour or select children's books and videos from the Family Library.
A Family Learning Center in the Connelly Center offers classes to help families learn new skills needed to care for their children in the Hospital or at home.
Learn more about the Connelly Resource Center »
Reviewed by: IBD team
Date: January 2014
Contact the Center for Pediatric Inflammatory Bowel Disease.