If your child needs a lung or heart/lung transplant, he or she will need the expertise of physicians and other healthcare professionals in a variety of specialties. The transplant program has a full-time dedicated pediatric pulmonary transplant medical director, Dr. Samuel Goldfarb, who has extensive experience caring for both transplant and complex pulmonary patients.
These physicians are supported by more than a dozen colleagues trained in general pediatric pulmonary and other specialties, including:
Our specialists will also consult with your child's regular pediatrician or family doctor regularly and update him or her on your child's progress.
The Lung Transplant Program is led by cardiothoracic transplant surgeons dedicated to heart, lung, and heart-lung transplantation, as well as cardiothoracic surgery. They have worked extensively with the most complex pediatric case.
Each Lung Transplant Program staff member knows this is probably the most difficult time for your family. While we can't ease all the emotional stress you're under, we'll do all we can to help you cope. We know that clear communication about your child's illness and progress is especially important, so we make this a priority. We can also help you address practical matters, such as dealing with the financial issues related to transplant and follow-up care. If you have any concerns about your child's care, please don't hesitate to ask any transplant team member.
Children's Hospital also offers an abundance of support services for children and families, from counseling to Child Life specialists and support groups. The Connelly Resource Center for Families provides educational materials, a laundry room and showers, as well as a comfortable place to spend some quiet time or connect with other families. Our South Tower offers family lounges with space to eat, relax and watch TV; laundry facilities; playrooms with attached teen rooms; hallway telephone stations with seating; and comfortable family waiting areas at the entrance to each patient unit. If you have questions about available hospital resources, please feel free to ask.
After your child's transplant, he or she will be cared for in one of the nation's largest and best-equipped Pediatric Intensive Care Units (PICU) or Cardiothoracic Intensive Care Unit (CICU). The unit's highly experienced critical care staff is specifically trained in the care of transplant patients — as well as a variety of other critically ill children — and works closely with the transplant team on its daily rounds.
After your child leaves the PICU/CICU, he or she will be transferred to the pulmonary floor, where the nursing staff have been specially trained to work with post lung transplant patients.
After lung transplant, your child will need a lifetime of follow-up care. At our facility, we share a partnership with the University of Pennsylvania Hospital Lung Transplant program. We also have a partnership with many other solid organ transplant programs across the country. Lastly, our program has established connections and work in collaboration with many other subspecialty programs within CHOP and can assist with the coordination of complex care necessary pre and post transplantation.