Neurofibromatosis

Overview

The Neurofibromatosis (NF) Program is a clinical center for the diagnosis and treatment of neurofibromatosis type 1, providing surveillance and treatment of NF-related problems. Our clinic coordinates your child's care with ophthalmology, neurology and orthopaedics.

Elaine Zackai, MD, director of Clinical Genetics, does intake and diagnostic evaluations of neurofibromatosis at the Main Campus.

Our Neurofibromatosis staff at Pediatric and Adolescent Specialty Care, King of Prussia West then see patients with NF 1 for their annual medical appointments, as well as for any acute NF-related concerns.

The Children's Hospital Division of Oncology sees NF 2 patients, as well as NF 1 patients with active tumors (under therapy) or large plexiform neurofibromas.

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