The Neurofibromatosis (NF) Family Association is a parent volunteer group that exists to support families and individuals at The Children’s Hospital of Philadelphia who are affected by neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) or schwannomatosis. The goal of the Association is to help enhance and expand CHOP’s NF clinical services and research endeavors, and build an NF community through robust educational and fundraising activities.
We recommend that children with a diagnosis of NF1, or those suspected of having NF1, call 215-590-2920 to reach the Neurofibromatosis Program at CHOP. Adults who have neurofibromatosis type 1 (NF1) or who would like more information about NF1 may contact the Medical Genetics team at the Hospital of the University of Pennsylvania at 215-662-4740. Appointments can be requested online or by calling 1-800-789-PENN (7366).
Adults and children who have neurofibromatosis type 2 or who would like more information about neurofibromatosis type 2 may contact the Medical Genetics team at The Hospital of the University of Pennsylvania at 215-662-4740. Appointments can also be requested online or by calling 1-800-789-PENN (7366).
213 S. Wheaton Ave.
Wheaton, IL 60187