CureSearch, the Web site of the Children's Oncology Group, contains a wealth of information on diagnosis and treatment of childhood cancer, as well as individual and family lifestyle adjustments during and after treatment. There is also a section for health professionals. The information is written or reviewed by pediatric oncology professionals for accuracy.
NCI Pediatrics is the National Cancer Institute's central page for childhood cancers collects links to information about treatment, clinical trials, testing, and research.
NCI Family Handbook is the Parent's Handbook written by NCI staff and contains a large amount of valuable, practical advice for families of children with cancer. The handbook is available online and as a PDF for printing. It includes links to other NCI patient brochures on cancer-related topics.
OncoLink is maintained by the Abramson Cancer Center at the University of Pennsylvania, and contains a wide variety of information on adult and pediatric cancers. It also has information on coping with cancer, and a gallery of artwork by both adult and pediatric patients and families.
People Living With Cancer Childhood Cancer section is maintained by the American Society of Clinical Oncology (ASCO), and provides a brief overview of diagnosis and treatment as well a links to ASCO resources for patients.
Children's Cancer Web in the United Kingdom provides a collection of links to other online resources about childhood cancer, maintained as a personal-interest project by a researcher.
Support and advocacy
Squirrel Tales The Never-Ending Squirrel Tale is an often lighthearted Web site by parents of children with cancer that is intended to be (in their own words) "an uplifting and practical Web site to encourage and empower parents of kids with cancer when they feel the most discouraged and powerless".
SuperSibs is an organization that recognizes and supports siblings of children with cancer. Their Web site lists their services and explains how parents can connect siblings with the program.
Teens Living With Cancer is a Web site of Melissa's Living Legacy Foundation that provides information by and for teens with cancer. While it includes facts about specific diseases and treamtents, its focus is on lifesylte and peer issues affecting adolescents with cancer.
GroupLoop is a teen-oriented site containing information about lifestyle issues and hosting online support groups. It is run by The Wellness Community, a non-profit support organization for people with cancer.
2bme is home to a collection of short articles for teens with cancer on handling non-medical issues like diet, body image, and relationships.
ACOR The Association of Cancer Online Resources hosts electronic support groups for patients and famiies, including mailing lists and collections of links to other support sites. It also contains information on specific diseases and treatments, written from the perspective of patient and family advocates.
CancerCare is a non-profit organization that provides free support services, coordinated by social workers, to patients and families. These include online and telephone contact and referrals to local resources.
Band-Aids and Blackboards is maintained by one of the CUNY nursing faculty, and offers information for children, teens, and adults with chronic illness.
Chemo Angels connects patients in treatment with volunteers who provide encouragement through messages, cards, etc.
Songs of Love creates personalized songs for children with serious illnesses. Request forms can be downloaded from their Web site.
Keeping in touch
CarePages provides a Web site for each family, through which they can share information about their progress through a child's treatment. Friends and family can view the page and post messages of support.
Caringbridge is another place where families can create Web sites to share information with friends and family about their progress through treatment and recovery, and to receive messages from visitors to their Web site.
Books
Childhood Leukemia This book collects both medical and support information about leukemia in children, along with stories from patients and families. It is intended as a primer and reference for parents of children with leukemia.
Childhood Cancer This book covers solid tumors in children, with a similar approach to that seen in Childhood Leukemia.
