Cancer Survivorship Program at the Cancer Center

Resources for Pediatric Cancer Survivors

The following organizations offer information and support to pediatric cancer survivors.

Foundations

Candlelighters Childhood Cancer Foundation
This national, non-profit organization educates, supports, serves and advocates for families of children with cancer, survivors of childhood cancer and the professionals who care for them.

CureSearch
CureSearch is the combined effort of the Children's Oncology Group (COG) and the National Childhood Cancer Foundation (NCCF), two organizations with the common goal of finding a cure for childhood cancer. Their site provides information and support for both those on treatment and those who are now survivors. The information is disease specific and is presented for patients, parents and families, and healthcare professionals.

Lance Armstrong Foundation
The foundation's site has information for patients living with and beyond cancer. Its focus is on advocacy, education, public health and research. Other features include survivor stories and information about the physical, emotional and practical aspects of survivorship.

National Brain Tumor Foundation
A good site specifically for survivors of pediatric brain tumors.

National societies

Beyond The Cure
Beyond the Cure is a program of The National Children's Cancer Society. It helps childhood cancer survivors integrate the cancer experience into their new life as survivors and successfully handle the challenges that may lie ahead of them. The site has information about late effects, particularly those relating to education, work, fertility and psychological issues. In the near future, this site will also allow one to enter information about diagnosis and treatment and create a personal profile of medical history and potential late effects that may be accessed by both the survivor and a caregiver (with the survivor's permission). It will also provide guidelines for healthy living.

The Leukemia and Lymphoma Society
The Society's mission is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and to improve the quality of life of patients and their families. Check out their Survivorship Education Series which includes webcasts, teleconferences and conferences for survivors, families and healthcare professionals.

American Cancer Society
This site provides support and information to cancer survivors. Here you'll find links to the ACS Cancer Survivors Network and other resources from the American Cancer Society, as well as links to outside organizations.

Financial resources

The SAMFund
The SAMFund is a unique non-profit organization created to assist young adult survivors of cancer with a successful transition into their post-treatment life, by providing financial support through the distribution of grants and scholarships.

Scholarships for Cancer Survivors
Visit our scholarship listings pages to learn more about the opportunities available to you.

Other resources

Cancer Survivors Project
Cancer Survivor's Project is an organized, international community of long-term cancer survivors and their friends, working together to improve the lives of children and adults after cancer.

Childhood Cancer Survivor Study
This site provides information about the Childhood Cancer Survivor Study, a study of more than 14,000 childhood cancer survivors. Here you can learn more about some of the results of this important, ongoing research study.

Children's Oncology Group Long-Term Follow-Up Guidelines
Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers were developed by the Children's Oncology Group. The guidelines are recommendations for the screening and management of late effects that may potentially arise from therapeutic exposures during treatment for pediatric malignancies. The site's Health Links offer patient-focused, easy to understand material on topics such as heart and lung health, dental issues, growth hormone deficiency and other endocrine problems, fertility and much more.

Living Well After Childhood Cancer
The Living Well After Childhood Cancer program at the University of Pennsylvania Abramson Cancer Center offers comprehensive monitoring and care to childhood cancer survivors age 21 and over.

NCCS: National Coalition for Cancer Survivorship
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors. The focus of NCCS is advocacy and education.

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