Resources for Families
General orthopaedic information online
Orthoguide
Includes Internet links to orthopedic sites.
Medscape
This search engine has the Internet's largest collection of free, full-text, peer-reviewed clinical medicine articles. Search for treatment updates, health news and more.
American Academy of Orthopaedic Surgeons/American Association of Orthopaedic Surgeons
Includes patient information about orthopaedic conditions.
American Orthopaedic Society for Sports Medicine
The American Orthopaedic Society for Sports Medicine (AOSSM) is a national organization of orthopaedic surgeons specializing in sports medicine. This site includes patient education materials.
Children's Safety Network National Injury and Violence Prevention Resource Center
Includes links to resources on the Internet.
The National Dissemination Center for Children with Disabilities
This site is a national information and referral center with information on disabilities and disability-related issues for families, educators and other professionals.
Scoliosis
Books
Abby's Twin: The Babysitter's Club, Ann M. Martin. Scholastic Inc., 1996.
Organizations
National Scoliosis Foundation (NSF)
5 Cabot Place
Stoughton, MA 02072
Phone: 781-341-6333
Fax: 781-341-8333
E-mail: scoliosis@aol.com
The Scoliosis Association, Inc.
P.O. Box 811705
Boca Raton, FL 33481-1705
Phone: 1-800-800-0669 or 561-994-4435
Fax: 561-994-2455
This association publishes a quarterly newsletter and pamphlets. A single copy of their fact sheet is available free with a self-addressed, stamped envelope. The association also provides information about local chapters and support groups.
The Scoliosis Research Society
The Scoliosis Research Society seeks to foster optimal care for the patient
with spinal deformity, through education, research, advocacy, and ethical
practice. Web site includes extensive information on scoliosis and physician
listings.
Internet
American Academy of Orthopaedic Surgeons
Cerebral palsy
Books
Each of Us Remembers: Parents of Children with Cerebral Palsy Answer Your Questions. S. Weiss. Washington, DC: United Cerebral Palsy Associations, Inc. 1660 L Street NW, Suite 700, Washington, DC 20036.
Caring for Children with Cerebral Palsy: A Team Approach. Ed. John Dormans, MD; Louis Pellegrino, MD. Brookes Publishing Company, P.O. Box 10624, Baltimore, MD 21285. Phone: 1-800-638-3775.
American Academy for Cerebral Palsy and Developmental list of book titles
Organizations
United Cerebral Palsy Associations, Inc.
1660 L Street NW, Suite 700
Washington, DC 20036
Phone: 202-776-0406; 202-973-7197 (TT)
1-800-872-5827 (V/TT)
E-mail: ucpanatl@ucpa.org
Web address: www.ucpa.org
Internet
Medscape
Search for cerebral palsy
Musculoskeletal tumors
Organizations
NIH Osteoporosis and Related Bone Diseases-National Resource Center
1232 22nd St., NW
Washington, DC 20037-1292
Phone: 202-223-0344 or 1-800-624-BONE; TTY: 202-466-4315
Fax: 202-293-2356
The NIH Osteoporosis and Related Bone Diseases-National Resource Center provides patients, health professionals and the public with an important link to resources and information on metabolic bone diseases.
Internet
Oncolink
Premier Internet site about cancer with comprehensive information about specific types of cancer, updates on cancer treatments, discussion groups and news about research advances.
For more information about childhood musculoskeletal cancers, call the National Cancer Institute's Cancer Information Service at 1-800-4-CANCER (1-800-422-6237). A trained information specialist will answer your questions.
You may want to take a look at Young people with cancer: A handbook for parents.
Rare and congenital disorders
Organizations
National Organization for Rare Disorders (NORD)
This is a federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities.
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