News from the Stroke Program
Save these important dates:
Sunday, October 25, 2009
Pediatric Stroke Conference
Families, school personnel, therapists (anyone involved in your child's life) are invited to join in this exciting day.
- Valuable information regarding pediatric stroke
- Guest speaker: Robert Naseef, PhD - how to navigate family and community relationships so everyone's needs are being met
- Meet our authors
Ongoing - Kids Just Want to Have Fun
If you like to meet new people and make new friends while doing fun activities that kids enjoy, please join us. You must be between the ages of 6 and 14. Please contact Lois Robbins for more information, at 267-426-0218 or robbinsl@email.chop.edu.
Resource lending library
Please contact Lois Robbins, MSW, if interested in borrowing books. 267-426-0218 or robbinsl@email.chop.edu
Become an author
Moms, Dads and Kids of all ages! We are looking for families interested in sharing "their story". We are compiling stories of different members of families to include in a book that we can share with other families who may be going through what you have experienced. Please feel free to share whatever you would like others to know. The book will also be used to help educate the medical and school communities as well as the general public. Here are some topics a few parents thought would be helpful. Remember it's your story!
- diagnosis - that 1st day
- why my child?
- one parent's reaction and how it differs the other's
- questioning faith
- the child understanding
- strangers' reactions
- will our family adjust; will our child fit in
- angry at others with "normal children"
- have more compassion, caring less about "crap"
- future - what will it hold?
These are certainly not mandatory topics but they may be helpful as a starting point.
Student writings: Please share your experience with others and what you want people to know! Service learning credits may be available.
We are trying to arrange special events for those who become authors. All submissions must be in by July 15, 2009. Please contact Lois Robbins, 267-426-0218 robbinsl@email.chop.edu or Elisa Olson, 215-590-3049 olsone@email.chop.edu.
News from Congress
Rep. John Boozman (AR) and Senator Robert Casey (PA) introduced resolutions in the House and Senate "commending the Children's Hospital of Philadelphia for its initiative in creating the Nation's first program dedicated to pediatric stroke patients." It was further resolved that the Congress "(1) supports the designation of an appropriate date as 'National Childhood Stroke Awareness Day'; and (2) urges the people of the United States to support the efforts, programs, services, and advocacy of organizations that work to enhance public awareness of childhood stroke." Please let your Representatives and Senators know how much this is appreciated and needed.
Contact Us
- 215-590-4142
