Primary Ciliary Dyskinesia Center

Resources for Professionals


If you are a provider and would like to refer a patient to the PCD Center at The Children’s Hospital of Philadelphia for an evaluation, please email Samuel B. Goldfarb, MD or Katie Oshrine, RN, CRNP.

Please have the following information available in order to expedite your request.

Patient's name
Patient's date of birth
Patient’s home address
(house or apartment number, street, city, state and zip code)
Patient’s health insurance carrier and contact information
Insurance individual ID number
Health insurance group and plan ID
Medical diagnosis
Current provider
Provider telephone
Provider email address
Additional comments/information

The National Heart, Lung and Blood Institute (NIH) has additional helpful resources for healthcare providers treating children with primary ciliary dyskinesia.

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