A Two-day Schedule for Aaron's Caregiver
Below is an example of a two-day schedule for Aaron's caregiver. Note: these are two days in which Aaron does not have medical appointments or medical supply deliveries, which add to the caregiver's stress and responsibilities.
| Time | Event |
| 6 a.m. | Wake up, shower and complete some paperwork |
| 7 a.m. | Relieve night nurse |
| 7:15 a.m. | Attempt to bottle-feed |
| 7:45 a.m. | Bottle-feeding unsuccessful, prepare bath |
| 7:55 a.m. | Remove monitor probes from baby's foot and chest |
| 8:05 a.m. | Give bath |
| 8:35 a.m. | Do g-tube site care |
| 8:45 a.m. | Dress Aaron |
| 8:55 a.m. | Attempt to bottle-feed again |
| 9:30 a.m. | Bottle-feeding unsuccessful, prepare for gravity feed |
| 9:40 a.m. | Drop gravity feeds, monitor speed and administer medications |
| 10:10 a.m. | While gravity feeds continue, collect and label empty O2 canisters - crack one full E and one full D tank |
| 10:25 a.m. | Wash and sterilize medication syringes and feeding supplies - interrupted |
| 10:30 a.m. | Aaron gagging, must assess. Console. |
| 10:50 a.m. | Transfer baby from upstairs O2 concentrator to downstairs H tank |
| 10:55 a.m. | Phone call |
| 11:10 a.m. | Attempt to finish washing and sterilizing syringes and feeding supplies |
| 11:12 a.m. | Aaron gagging, must assess. Aaron pulled out his nasal cannula - replace. Return to washing |
| 11:15 a.m. | Decide to soak syringes and supplies instead and eat |
| 11:25 a.m. | Phone call |
| 11:30 a.m. | Aaron gagging, crying. Assess. Diaper changed |
| Noon | Aaron naps. Take inventory and reorder medical equipment |
| 12:30 p.m. | Aaron awakes |
| 12:45 p.m. | Physical therapy |
| 1:20 p.m. | Change diaper |
| 1:30 p.m. | Nebulizer treatment |
| 1:55 p.m. | Rinse out supplies from the morning and nebulizer supplies |
| 2:10 p.m. | Attempt to feed solids |
| 2:40 p.m. | Attempt to bottle-feed |
| 3:30 p.m. | Bottle-feeding unsuccessful, prepare gravity feeds |
| 3:40 p.m. | Gravity feed hung, administer medications. Monitor speed and vent tube |
| 4 p.m. | Attempt to wash supplies |
| 4:25 p.m. | Phone call |
| 4:40 p.m. | Aaron gagging, crying. Must assess. Console |
| 5:20 p.m. | Soak supplies |
| 5:45 p.m. | Rinse supplies |
| 5:55 p.m. | Aaron crying. Console |
| 6:20 p.m. | Give nebulizer treatment and change diaper |
| 6:40 p.m. | Attempt to feed solids |
| 7:15 p.m. | Attempt to bottle-feed |
| 8 p.m. | Set up gravity feeds, give medications, monitor speed and vent the tube. Eat dinner |
| 9 p.m. | Prepare Aaron for bed. Attach monitors. Change clothes. G-tube site care. Transfer baby to O2 concentrator |
| 9:45 p.m. | Baby sleeping. Caregiver break |
| 10:15 p.m. | Draw medications for tomorrow. Make formula |
| 11 p.m. | Nebulizer treatment |
| 11:20 p.m. | Rinse nebulizer supplies |
| 11:30 p.m. | Attempt to bottle-feed |
| Time | Event |
| 12:15 a.m. | Drop gravity feeds and vent tube |
| 12:50 a.m. | Caregiver sleeps |
| 1:15 a.m. | Pulse-oximeter alarms. Must assess |
| 1:25 a.m. | Caregiver sleeps |
| 2 a.m. | Pulse-oximeter alarms. Must assess |
| 2:05 a.m. | Caregiver sleeps |
| 2:15 a.m. | Pulse-oximeter alarms. Must assess |
| 2:25 a.m. | Caregiver sleeps |
| 2:45 a.m. | Pulse-oximeter alarms. Must assess |
| 2:55 a.m. | Caregiver sleeps |
| 3 a.m. | Pulse-oximeter alarms. Must assess |
| 3:10 a.m. | Give nebulizer treatment |
| 3:30 a.m. | Drop gravity feeds |
| 4:35 a.m. | Caregiver sleeps |
| 5:14 a.m. | Pulse-oximeter alarms. Must assess |
| 5:25 a.m. | Caregiver sleeps |
| 6:15 a.m. | Pulse-oximeter alarms. Must assess |
| 6:20 a.m. | Pulse-oximeter alarms. Must assess |
| 6:45 a.m. | Give nebulizer treatment and change diaper |
| 7:05 a.m. | Attempt to bottle feed |
| 7:30 a.m. | Remove alarm probes, bathe and dress baby |
| 8:15 a.m. | Physical therapy. Caregiver showers and eats a snack. Change O2 tubing upstairs. |
| 9:20 a.m. | Attempt to bottle-feed |
| 10:15 a.m. | Bottle-feed unsuccessful. Drop gravity feeds and administer medications |
| 11 a.m. | Wash clothes. Rinse feeding and medication supplies |
| 11:45 a.m. | Aaron gagging, crying. Must assess. Console |
| Noon | |
| 12:30 p.m. | Change diaper, replace nasal cannula. Read books together |
| 1:15 p.m. | Phone call. Place wash in dryer |
| 2:05 p.m. | Give nebulizer treatment |
| 2:30 p.m. | Attempt to feed solids |
| 3 p.m. | Attempt to bottle-feed |
| 3:50 p.m. | Bottle-feed unsuccessfull. Drop gravity feed, administer medications. Vent the tube. |
| 5 p.m. | Aaron naps. Caregiver prepares dinner |
| 5:15 p.m. | Phone call |
| 5:45 p.m. | Aaron awakes. Put him in the swing. Wash dishes |
| 6 p.m. | Phone call. Change diaper |
| 6:15 p.m. | Give nebulizer treatment |
| 6:30 p.m. | Attempt to feed solids |
| 7 p.m. | Attempt to bottle-feed |
| 8 p.m. | Drop gravity feeds. Caregiver eats dinner |
| 8:45 p.m. | Transfer baby upstairs |
| 9:30 p.m. | Caregiver takes a break |
| 10 p.m. | Draw medications for tomorrow, make formula. Rinse supplies |
| 11:05 p.m. | Private-pay nurse relieves caregiver |
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