Your Child’s Visit, Thoracic Insufficiency Syndrome at CHOP | The Children's Hospital of Philadelphia

Center for Thoracic Insufficiency Syndrome

Your Child’s Visit

Thank you for choosing The Center for Thoracic Insufficiency Syndrome at the Children’s Hospital of Philadelphia.

Our Center, part of the Division of Orthopedic Surgery, offers world-class, comprehensive care from a multidisciplinary team of physicians, nurses and support staff. Our team performs more than 50 thoracic insufficiency syndrome diagnostic procedures each year and has broad experience diagnosing and treating some of the rarest conditions in the world.

This section will help you better prepare for your child’s initial visit to our Center, detail what you can expect, and offer you resources to better understand your child’s medical issues. Use the links below to take you directly to the information you need.

Further details are available about our treatment approach, VEPTR FAQs and follow-up care after VEPTR surgery.

Preparing for your visit

Before you even leave your home, we offer resources to introduce you to The Children's Hospital of Philadelphia and to help you prepare for your visit. Use this section to learn what you need to know ahead of time.

How to prepare your child

Healthcare experiences can be stressful for children of all ages. Preparing children ahead of time for the things they may experience during their healthcare visit will reduce much of their anxiety, as well as help them cope.

Providing your child with honest, accurate information will help to alleviate many of her fears and fantasies about what will happen. We offer some tips to help you prepare your child.

Who you’ll meet

All of the healthcare professionals and employees at CHOP are dedicated to providing the best care to your child and your family, and to making your experience with us as comfortable as possible.

For a list of some of the types of healthcare professionals you might meet and information about the role they play as part of the healthcare team, see your healthcare team. For a list of team members of the Center for Thoracic Insufficiency Syndrome and links to their bios, see meet our team.

What to bring to your child's appointment

Being prepared for your first visit at the Center for Thoracic Insufficiency Syndrome at CHOP will ensure a smooth check-in and prevent unnecessary delays.

Please make sure you bring the following to your first appointment:

Getting here and directions

Your child’s first appointment will be held in the Division of Orthopedic Surgery on the second floor of the Wood Building at CHOP’s Main Campus.

Driving and parking

Public transportation

Maps

Contact us

For more information or to schedule an appointment with the Center for Thoracic Insufficiency Syndrome at CHOP, call 215-590-3722 or contact us online.

Reviewed by: Robert M. Campbell Jr., MD
Date: January 2013

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Contact Us

215-590-3722

Contact us online.

Owen's Story

One mom shares her family's story with thoracic insufficiency syndrome and VEPTR surgery at CHOP — including a happy ending for her little boy.
Read Owen's story »

Organizing Your
Child's Care

In caring for your child with TIS, you may get information and paperwork from many sources. The CHOP Care Binder will help you organize your child's doctors, treatments, medications and more. Learn about Care Binders.