Trisomy 21 Update
A newsletter from the Trisomy 21 Program at The Children's Hospital of Philadelphia
Welcome to the official newsletter of the Trisomy 21 Program. You'll find each issue archived here.
Issue highlights:
- Practice without pressure can take the scare out of care
- 11th Annual Buddy Walk & Family Fun Day: Oct. 7, 2012
- New parent-family reception: Nov. 3, 2012
- Adult corner: communication and mental health
- New T21 support and advocacy group in New Jersey
- Chaining: independence with activities of daily living
- Ask the advocate: you are your loved one's best advocate
- Community resources for families
- Trisomy 21 team
Issue highlights:
- Treadmill training can help accelerate walking in babies with Down syndrome
- The Down Syndrome Growing Up Study
- New physical therapy services available at CHOP for individuals with Down syndrome
- Preparing for future care of adults with Down syndrome
- Help your child learn to feed himself
- Down syndrome nutrition questions
- Helping children with Down syndrome develop chewing patterns
- New parent-family reception
- Ask the advocate
- Community resources for families
Issue highlights:
- 10th Annual CHOP Buddy Walk and Fun Day
- Introducing the Trisomy 21 Parent Peer Program
- Interview with: Babette Zemel, PhD, Division of Gastroenterology, Hepatology and Nutrition, about the Down Syndrome Growing Up Study
- Occupational therapy in the pool
- Occupational therapy quick tips
- Do you need more services or equipment for your child?
- Updated car seat recommendations
- New parent-family reception
- Ask the advocate
- Community resources for families
Issue highlights:
- Interview with: Erin Cipriano, AuD, CCC-A, Division of Audiology, about the importance of hearing tests
- We've moved: Trisomy 21 Program now at 3550 Market St.
- Spotlight: Adult Trisomy 21 Program
- Buddy Walk 2009
- 7th Annual Trisomy 21 Symposium
- My Great Story Campaign
- Challenger day: Learning about sports, arts and crafts and more
- Resource directory and other resources available through the Trisomy 21 Program
Issue highlights:
- CHOP Buddy Walk and Family Fun Day
- DufferFest 2007
- Spotlight on: Tahira Adelekan, MD
- Information on Local Down Syndrome Interest Groups (DSIGs)
- Interview with: Frances Rosenblum, MD, General Pediatrics
- Upcoming educational sessions
- Resource directory
Issue highlights:
- Fourth Annual Trisomy 21 Symposium
- Occupational therapy and Down syndrome
- Spotlight on: Hillary Kruger, MD, a new physician with the Trisomy 21 Program
- Why wear an orthotic?
- Interview with: Craig Alter, MD, Division of Endocrinology, about the higher risk for endocrinologic disorders for individuals with Down syndrome
- Upcoming educational sessions
- Resources available through the Trisomy 21 Program
Issue highlights:
- Buddy Walk 2006
- Challenger day: Participants try sports, activities
- Welcoming our Trisomy 21 fellow, Patty Huang, MD
- Spotlight on Otolaryngology: Interview with Udayan K. Shah, MD, director, Otolaryngology Innovative Technologies Program
- Support groups
- Social work and community education
- Physical therapy
- Resources available through the Trisomy 21 Program
Contact us
Please feel free to submit suggestions, feedback or questions to trisomy21@email.chop.edu.
Date: October 2012