Turner Syndrome Program Services
From diagnosis, evaluation and treatment to follow-up services and resources, the Turner Syndrome Program at CHOP helps patients and families learn more about managing the care of girls with Turner syndrome.
Our program offers easy access to the many subspecialties at The Children's Hospital of Philadelphia. Once your child is diagnosed with Turner syndrome, we offer a comprehensive diagnostic evaluation that may include consultation with healthcare professionals from several subspecialties, including: Genetics, Audiology, Cardiology, Nephrology, Child Development, Orthopedics and Dermatology.
Patient-family education and support programs
The Turner Syndrome Program offers several events designed to provide support to families of girls with Turner syndrome. They include:
Spring Fling for Turner syndrome - for families
The Spring Fling for Turner syndrome is a one-day educational program held annually at The Children’s Hospital of Philadelphia, Main Campus. The event offers education for families on medical issues related to TS, and fun-filled activities for girls with TS, ages 8-15 years.
Our 2012 Spring Fling was held on Saturday, June 2. The 2013 event will be announced in the upcoming months.
Learn and Connect sessions
For parents only
Learn and Connect sessions are held twice in the fall at our Voorhees, NJ, satellite location, and twice in the spring at our King of Prussia, PA, satellite location. The sessions are for parents of girls with Turner syndrome.
The goal is to bring parents together to network with other parents, and to provide an opportunity to learn about medical issues and parenting issues common in TS.
The sessions are designed and facilitated by the Nurse Practitioner of the TS Program, Denise Gruccio, CRNP, and the Endocrine Social Worker, Judy Ayala, LCSW, CDE.
Upcoming session
Please check back for information about our next Learn and Connect session.
Contact Us
- 215-590-3174
- Contact Us Online