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Inside Out: Understanding Abdominal Wall Defects (AWD) Video
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Learning Your Baby Has a Problem
Genetic testing revealed at 15 weeks of pregnancy, that Kate and Dom’s first child had an abdominal wall defect known as gastroschisis. For Gayle and Charles's child, the AWD diagnosis was omphalocele.
In this video series, parents, nurses and doctors talk about abdominal wall defects — specifically gastroschisis and omphalocele — and how The Children's Hospital of Philadelphia is making great strides in the treatment of children with these conditions. Use the links below to navigate through the series.
Videos in this Series
- NOW PLAYING
Learning Your Baby Has a Problem - Understanding Abdominal Wall Defects (AWD)
- Diagnosis & Treatment Options
- Other Issues Related to AWD
- Monitoring Your Baby Before Birth
- Gastroschisis: Delivery & Care
- Omphalocele: Delivery & Care
- After AWD Surgery: Your Baby's Feeding & Growth
- AWD Recovery Time & Going Home
- Follow-up Care for AWD
- Will My Baby Have a Belly Button?
Transcript: Learning Your Baby Has a Problem
Kate Distasio, Parent: Entenzo is our first child. I found out I was pregnant the end of November last year. I went for genetic testing initially and that's when they first saw something.
Dom Distasio, Parent: They just gave us a hint that here might be something wrong, which was at 12 weeks.
Kate Distasio, Parent: At 15 weeks they confirmed that he had gastroschisis.
Dom Distasio, Parent: Not knowing what it was, we were very scared at that point.
Stefanie B. Kasperski, MS: Getting the diagnosis of a fetal anomaly is devastating to a family. They go from the joy of being pregnant, the joy of having a baby, to my baby has a problem. My baby might not survive. Where do I turn?
Gayle Hughes, Parent: We were told that my son had a congenital defect called an omphalocele.
Charles Hughes, Parent: It was a difficult diagnosis to accept.
Gayle Hughes, Parent: They looked at all of our tests that we had had done up to that point and basically told us that they thought that they could fix Charlie's problem.
Charles Hughes, Parent: They thought they could help us and that it would be probably the most challenging thing we'd take on in our lives.
Stefanie B. Kasperski, MS: They want the best care for their baby. They want the best place, the best team to care for their child. And The Children's Hospital of Philadelphia's center for Fetal Diagnosis and Treatment has a multidisciplinary team in place that will help the family and that will guide the family to try and achieve the best possible outcome for their child.
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